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  1. Trish

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    I would steer well clear of Netflix. We should remind ourselves of how they completely misrepresented people, including one with very severe ME, in this documentary: Netflix "Afflicted" - ME included
  2. Trish

    Fit For Work – Three Part Series on BBC Radio 4

    The larger figure includes occupational pensions for public sector workers including teachers, NHS workers, civil service etc. and local authority employees, all of which are contributory pensions, so there's an income from current contributions which should cover a lot of that. The old age...
  3. Trish

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/page-20#post-266170
  4. Trish

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Another benefit in terms of NHS costs would come from cutting out all the CBT and GET group and individual treatments that seem sometimes to get funding for up to 20 sessions at 1 or 2 week intervals, as the dreadful so called research based in the Chalder/Wessely clinic stated. Even their...
  5. Trish

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    A post has been moved to Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them
  6. Trish

    USA: News from Solve ME

    From an email: A Personal Message from Solve CEO Oved Amitay Dear Friends, Today, I am sharing an important personal message with you. In February of 2020, I made my commitment to join Solve, and soon thereafter the global COVID-19 pandemic came upon us. We all had to make major adjustments...
  7. Trish

    Unexplained pathology is not always autoimmune, Brian F. Mandell, MD, PhD

    I don't understand why someone discussing whether various conditions are autoimmune thinks it's OK to throw this into the mix without providing any evidence. my bolding.
  8. Trish

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    I suspect program makers for Panorama and Dispatches get flooded with good ideas for programs. In our current situation we are not going to be regarded as either newsworthy or worthy of such a program. How about taking a different approach. There are some independent and well respected and...
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