Search results

Vive le franglais

Thanks @Woolie I will pick some up next time I'm in the pharmacy. I remember having anti histamine when I had chickenpox @28 and that definitely knocked me out

Just gets more and more fake. Simpering like a teenager at the better science better data thing and now acting like some kind of fourth rate motivational speaker. Ricky Gervais post seems very apt given his cameo in Unrest saying ME is that one where you just feel like staying in bed. Which...

Possible showing my ignorance here but is orthostatic intolerance/POTS a form of CVD?

I'm in the UK and 54 years old I recently asked my GP for melatonin as I have problems getting to sleep often awake at 3 or 4 am occasionally 6am. Once I get to sleep I can usually sleep for 6 hours. I found Amitryptyline gives a hangover effect even at 10mg and it stopped working and I didn't...

B S practitioner

Well if this is being inflicted on severe patients this is up there in the evil bar steward rankings. IMO

You couldn’t make it up Oh okay you can just call it heuristic

QUOTE="Sasha, post: 12953, member: 46"]Can you break your post up a bit please, @NelliePledge? A lot of us struggle with big blocks of text. Yes sorry it was a bit stream of consciousness thanks to the sugar

Apologies if I’ve misread this in the section about leptin he seems to be saying leptin is high but there could be an issue with leptin receptors and people put on weight and low carb is a good way of trying to address this. Then much further on he says that people with ME are thin and have...

Good point @Binkie4 seems like regular heart checks should be on the list of many issues to be covered in replacement NICE guidelines @

Walking for more than a couple of minutes is guaranteed to cause me PEM and if I already have PEM walking definitely makes things worse rather than alleviating. Amazing how different people experience this in different ways. Edited to add standing in a queue or in a room full of people eg...

Thanks for this reference ChrisH I need to read this article by Dr Cheney about diastolic issues. Im someone who has been increasingly overweight over the last 20 years diagnosed with ME 2 years ago having had symptoms for several years before that. I had always assumed that my hypertension...

I got into a discussion elsewhere about this term which appears to have different meanings on each side of the North Atlantic. This Wikipedia article sums it up quite well I think anyway. In the case of this thread the original post is iof an article by a UK psychologist talking about the UK...

https://www.actionforme.org.uk/news/join-us-for-me-event-at-the-royal-free-hospital/ Possibly now fully booked I was going to add to the 14 Nov AFME Bath thread but could not work out how to edit the title sorry Anyway possibly worth own thread as Sonia Chowdhury of AFME will be joined by S...

I will put this link on the AFME 14 Nov Bath thread

Thanks for correcting the name I was doing it on my phone from memory. Hopefully whoever the patients are will be up to speed with other panel members background will be interesting to get any feedback from anyone present to what extent there is pushback from other panel members against any...

https://www.eventbrite.nl/e/unrest-film-screening-at-the-leiden-university-medical-center-tickets-37816978601

Didn’t seem to put him off posting/commenting on the other place when everyone was still there. And he regularly posts on MEA Facebook. id

https://www.actionforme.org.uk/news/unrest-screening-plus-q-and-a-in-bath-on-14-november/ tickets are free Q&A panel to include Sonia Choudhury Also Jan Daniels Clinical Psychologist with experience in NHS including CFS//ME Also patients on the panel according to the update Being held at...