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  1. rvallee

    DecodeME in the media

    Complete horseshit. Trying to legitimize their fake concept of sensitization by using solid evidence that has nothing to do with it. Monstrous. And enough with this "flight of flight" junk. This has exactly zero to do with acute infections, with being ill or anything related to this. These...
  2. rvallee

    DecodeME in the media

    Smithsonian (a major US federal museum) Magazine Scientists Find Links to Chronic Fatigue Syndrome in Genes and in the Gut Microbiome https://www.smithsonianmag.com/smart-news/scientists-find-links-to-chronic-fatigue-syndrome-in-genes-and-in-the-gut-microbiome-180987141/
  3. rvallee

    Articles by Elke Hausmann, GP

    What perspective does to someone. It's so appalling think of all the suffering that could have been avoided, in fact what has been artificially created, if only medicine had actually lived up to what they claim to, how patients know our illness best. This is literally the whole point of having...
  4. rvallee

    Keystone symposium Long COVID and Other Post-Acute Infection Syndromes August 10-13 2025

    Oh they also think it's fake in adults. It's just an excuse, not a serious reason, so they don't need to say it here, but obviously we know this is why they do nothing. It's what they've been doing for decades: nothing.
  5. rvallee

    Keystone symposium Long COVID and Other Post-Acute Infection Syndromes August 10-13 2025

    Unfortunately, this is exactly what has been written down and promoted by actual professionals. In textbooks teaching the new graduates, in supplementary training material, in guidance everywhere. What this actually is is medicine by magical thinking. Written down, defended and overhyped by...
  6. rvallee

    Keystone symposium Long COVID and Other Post-Acute Infection Syndromes August 10-13 2025

    Same as it ever was. You could read the exact same excuse a century ago, nothing's changed at all, it's all stuck in time. And they do this because there are never any consequences for being wrong. Not only is no one ever held accountable, even after things shift there is never any thought to...
  7. rvallee

    Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned, 2025, Grieve, Chew-Graham et al

    Those two concepts are very different from one another. If there is a problem with "how thoughts and feelings, personal relationships and lifestyle can affect chronic pain" in research, it's that there is far too much obsession over it, and not enough serious efforts going to actually solve this...
  8. rvallee

    Breathlessness and dysfunctional breathing in patients with [POTS]: The impact of a physiotherapy intervention, Reilly et al., 2020

    No. Lots of health care professionals have been saying so, without any reason. Lots of people have been told by HCPs that they have this. So it's not based on the subjective experience of patients, it's just the opinions some professionals have decided was good enough an explanation for them to...
  9. rvallee

    DecodeME in the media

    I have no idea what the "nothing unique" criticism is supposed to be about. Nobody ever said that, and it doesn't even matter. This is about as close to just calling it poopyface as it gets while using fake language that may sound like legitimate criticism.
  10. rvallee

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Not strictly about heritability, but there is a pre-print of a GWAS for MS. It found 76 gene locations. Does that make it easier to figure out than with 8? I made a thread here: GWAS highlights the neuronal contribution to multiple sclerosis susceptibility, 2024, De Jager et al. Can be useful...
  11. rvallee

    GWAS highlights the neuronal contribution to multiple sclerosis susceptibility, 2024, De Jager et al

    GWAS highlights the neuronal contribution to multiple sclerosis susceptibility https://pmc.ncbi.nlm.nih.gov/articles/PMC11643295/ Multiple Sclerosis (MS) is a chronic inflammatory and neurodegenerative disease affecting the brain and spinal cord. Genetic studies have identified many risk loci...
  12. rvallee

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    I'd go one step further and assert, based on all the evidence I have seen spanning decades of such trials, that so-called pragmatic clinical trials of treatments are a completely useless method and should be banned entirely. It might be the most inefficient process ever put together by people...
  13. rvallee

    Criticisms of DecodeME in the media - and responses to the criticisms

    One reason they have to argue this is that all their awful questionnaires keep identifying symptoms and consequences that aren't particular to depression or anxiety. Because they ask generic overlapping questions. Which is their fault in the first place for misusing those, but now they have to...
  14. rvallee

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I don't believe what you say, because I've seen what you do, and even what you plan to do, and it's all the same BS and lies. This is not surprising, and it makes a total mockery of the inquiry and the hospital's and health care services lies about not being guided in their decisions by an...
  15. rvallee

    Trial Report Effect of internet-delivered exposure therapy versus healthy lifestyle promotion for [...] persistent physical symptoms (SOMEX1): 2025 Hybelius et al

    0=0, yet again. In a surprising twist. One day, they may see the mythical 0.1>0, but, probably not even that. What the hell is it going to take for funding institutions to stop funding the same pile of junk? Not a single trial like this deserves to be funded.
  16. rvallee

    Criticisms of DecodeME in the media - and responses to the criticisms

    Plus there is the loud and awkward fact that they, or anyone, cannot do that. If anyone, whether psychologists, psychiatrists or any other group of medical professionals could do that reliably, they already would have. The fact that they have not done that is all the proof that's needed that...
  17. rvallee

    Criticisms of DecodeME in the media - and responses to the criticisms

    There literally where frontpage headlines after PACE, as scantily evidenced as it gets, about how it means that exercise and happy thoughts are the cure for chronic fatigue. We were literally the only people criticizing what were blatantly fraudulent assertions not backed by any evidence, and...
  18. rvallee

    Criticisms of DecodeME in the media - and responses to the criticisms

    Some sort of... plan? That would... deliver better outcomes, uh? It would involve targets and work to address specific shortcomings such as this? There's an idea there, if only there were some... people... organized in some fashion who could... you know... think of something here? Ah well.
  19. rvallee

    Genetics: RABGAP1L

    Does it really matter? It doesn't seem like there is anything that needs to be unusual here. It's fundamentally different because it's a single virus doing it all, but most people with HIV probably don't have a story of unusual infections, the initial acute illness is generally pretty mild...
  20. rvallee

    Criticisms of DecodeME in the media - and responses to the criticisms

    I don't believe what he says because I've seen what he did;)
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