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  1. rvallee

    News from the USA, United States of America

    Denied. They keep repeating this claim that "several jobs exist in the national economy that Padua could perform" throughout the decision. I'm not sure of the legal doctrine behind imagination-based careers. I have no idea what a "document preparer" could even mean, I guess it means paralegal...
  2. rvallee

    News from Austria and Switzerland

    Yeah, it's a tough balance. We should be ignoring them, for now, they will never contribute anything, but we can't, because many of them are highly influential and doing everything they can do to sabotage things for us, so we don't have the luxury. For sure the research aspect can 100% ignore...
  3. rvallee

    Review Causes of symptoms and symptom persistence in long COVID and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Komaroff et al.

    IIRC it was mostly reductions in the, let's say, non-ME type of issues. Or not necessarily ME/not ME, but what's usually categorized as neurological symptoms is what had no differences, while the rest generally saw a slight reduction.
  4. rvallee

    News from Austria and Switzerland

    Anschober sees "dramatic neglect" of ME/CFS https://www.sn.at/panorama/oesterreich/me-cfs-anschober-dramatisch-vernachlaessigung-182336419 Austria's former Health Minister Rudolf Anschober (Green Party) sees a "dramatic neglect" of the multisystem disease ME/CFS – and this has been the case for...
  5. rvallee

    Well known, famous people reported to have Lyme Disease.

    I don't know. In the hierarchy of things medical professionals hate, there's us, many levels underground, and many, many levels down there is chronic Lyme. It gets some of them spitting mad where we just get bored indifference. Somehow. It's actually really odd and unhinged. On the other side...
  6. rvallee

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Rather strong words, given Bastian's generally very moderate, even generous, attitudes towards Cochrane. She really seems to have genuinely tried her best, but with an organization that never had any intentions of doing the right thing, it was an impossible task. I really doubt this is confined...
  7. rvallee

    Watch out for the physio robots! - Guardian piece.

    There are likely cases where this applies, very specific cases, but it's obvious that the promises of rehabilitation have been wildly inflated based on wishful thinking. It even almost plays a magical role: if you can't treat illness, then you can rehabilitate it, which is not a treatment, but...
  8. rvallee

    UK: MRC [Medical Research Council] blog: Accelerating research in severe mental illness

    Some overlap, but we can separate intent and execution here, because the PACE model never had a single chance of working out, and it wasn't meant to. This is why they changed the NICE guideline to include the PACE model before, or right about when, the trial actually began, its results were...
  9. rvallee

    Increased breathlessness in post-COVID syndrome despite normal breathing patterns in a rebreathing challenge, 2025, von Werder et al.

    Obviously the conclusions are silly, but the fact that there will be zero examinations for years of baselessly asserting that "breathing patterns", which even reading about doesn't actually clarify anything and is obviously unrelated, must be the problem is itself a major problem. There was...
  10. rvallee

    Adaptive pacing : Dr Meg Arroll, psychologist and "international best-selling author"

    ... not a thing. Pacing is 'adaptive' by definition, so that's just a buzzword, and the way it's described makes no sense. I don't think I could care less about anything than the opinion of a 'top' psychologist about something they are obviously clueless about. This frankly reads like one of...
  11. rvallee

    Trial Report The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and CFS/ME: A Pilot Study, 2023, Serrat et al

    Fits well with the "bad things are bad research" from so many studies that find, puzzled and baffled, that sick people are unhappy and they can't figure out why, because they can't conceive of the illness being real, despite pretending to. Although, since the last few years of health care...
  12. rvallee

    Article: Study confirms post-pandemic rise in disorders of gut-brain interaction

    Glonzo still rules the day. The problem isn't real, no actually it's real, but it was a creature named Glonzo making people's tummies upset all along. Real homies know it's all Glonzo, only fools would think there is a natural explanation here. That's exactly what Glonzo wants you to believe...
  13. rvallee

    Social Determinants of Health and Risk for Long COVID in the U.S. RECOVER-Adult Cohort, 2025, Feldman et al.

    My first instinct here is to ask why it matters, because isn't that always true? And my second instinct is to ask: when is that not true? Seems about as useful as using as risk factor being alive. It's a very strong determinant for death and illness, being alive. So, isn't this always true? And...
  14. rvallee

    Australia: News from Emerge Australia

    The key ingredient is the people making the decisions not giving a damn because they can fart in a general direction and still get paid. 100% of the time, it works 100% of the time.
  15. rvallee

    News from Austria and Switzerland

    BÖP comes into the light of long-ignored disease https://www.ots.at/presseaussendung/OTS_20250729_OTS0003/boep-rueckt-lang-ignorierte-erkrankung-ins-licht?s=09 (BÖP is the association of Austrian psychologists) I can't say I agree that psychological support is, frankly, of any importance, I...
  16. rvallee

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    There is a good angle here, when all others have fail, given the overall messaging around it: if you want to get us back to work, you need to do YOUR job, you haven't done your job, and that's why so many are out of the workforce, even more now with Long Covid. Make it clear they are the holdup...
  17. rvallee

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Not to make a rigorous study out of it, but I'm curious to what degree people here think this plan meets the needs. Maybe a poll would be useful, but I don't think the forum software allows the kind of free range answers we need. Personally I'd rate it about about 5% of an ideal plan, by which...
  18. rvallee

    Long Covid in Year 5: Some Progress, Still Many Questions, 2025, Meagher

    Long Covid in Year 5: Some Progress, Still Many Questions Journal of Insurance Medicine https://jim.kglmeridian.com/view/journals/insm/52/2/article-p61.xml Long Covid was first described in 2020. Five years later, progress in disease characterization has been considerable, and definitions...
  19. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    I don't feel as generous in my assessment. It's slightly better than average, but that's only because the average is far below professional grade. It's not as heavily biased as some, but all this report does is cherry-pick a few examples of how things are done elsewhere or from low-quality...
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