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Janet Dafoe mentioned on twitter she had a long talk with him.

Yes. But in this case it’s just basic decency and journalism integrity to put a warning about exercising with ME in the article.

I sent her a follow up email highlighting the tweet from NI association. Here is her email if anyone wants to add on n.campbell@belfasttelegraph.co.uk

Urghhh Text of Answer: Hi Yann - Shelley herself has had ME for many, many years and the day is full of something for everybody, including smaller outdoor games and table activities. Emergency services will also be on hand. JustUs are simply trying to provide an inclusive and accessible day...

I put a tweet tagging the journalist in reply to the article. Edit: I’ve also sent them an email.

Confusing article. It seems someone who recovered from M.E. is trying to get people with all sorts of disabilities, including M.E. to exercise?? Disabled adults urged to have a go at sports day with a difference - Belfast Telegraph A charity is encouraging people with a disability to come...

Goodish news! Looks like they are planing to cover LC in a future ep. text: Weekly Pod w/Jon Stewart, 6/27: "..the long COVID community...we're talking about millions of people residual effects from getting these infections & have been debilitated..progress and research, glacially slow..that'll...

The google algorithm is pretty complex. Maybe it caught on to the website often being slow and downgraded it in search rankings. Wouldn’t suprise me.

PEM, which is most viewed me-pedia page, google search interest past 30 days.

You think? To be fair given the total view count I had roughly estimated a lifetime average of 10k views per day, which seems to be the number we’ve settled at here.

It’s getting worse. Hmm. I really wonder. A fivefold decrease from baseline is worrying to me.

Maybe there is a cognitive bias in that when your exertion is limited by sequelae, you are more likely to view your previous level of exertion as “high”, than someone who had regained the same level of functioning.

I don’t think so. Joanne Hunt is disabled herself. I think she’s criticising the lack of disability representation in the fields of psychology. From Abstract

Yeah honestly the best technique might just be to let this guy go on and “study” some other stuff without reminding him/making him think more about Long Covid/ME.

More extracts: Sorry the extracts are random, I’m just finding them on twitter, don’t have access myself.

Another segment from the study. Note how they admit FND and MUS are a euphamism for hysteria.

Thought this was worth sharing as it blows BPS subtleness out of the water. Directly compares ME/CFS and Long Covid to “hysteria”. Lots of Sharpes and Wessleys in the references as expected.

Link (Paywall): https://doi.org/10.1177/10398562231222809 Abstract Objective The aim is to consider Long COVID not as a new clinical entity but as another example of a disabling, historical phenomenon. Conclusions A triad of polymorphic symptomatology, an elusive pathophysiological explanation...

Makes the “Persistent Burnout Theory” of ME/CFS (courtesy of David Jameson), not even need to be proven if you start having the definition of ME/CFS being so large.

Abstract: A group of debilitating health conditions disproportionately impacting women, increasingly known as ‘energy limiting conditions’, is associated with a long history of medical and societal disability denial. This article offers reflections on socio-cultural, bio-political and...