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Article from what seems to be an Italian news source: https://www.agenzianova.com/en/news/long-covid-doubles-the-risk-of-hospitalization-with-over-4-deaths-from-this-condition/ The impact of the Long Covid on the state of health is proving to be relevant from the point of view of the National...

I’ve seen similar language used in online ME forums that have a lot of people new to the illness and very mild. I think it’s a really hard pill to swallow that it’s so rare to recover, and unfortunately even that kind of language that seems absurd to us might strike a cord with some unfortunately.

It’s crazy to me that their reporting is more “balanced” on the scam of a treatment the lightning process is, than it was when there were accusations of harassment from a few members of a vulnerable patient group.

If I have the energy in the next few days I’ll send it to Chantal Britt, the head of the swiss long covid association (assuming they haven’t already signed it yet)!

Thanks for doing that @forestglip. Also slightly random, but does anyone know if there is a way to see the most viewed me-pedia pages per certain time period (such as past month or year)? (Without having to mess with the API). I’m only able to find an “all-time” most popular pages page.

Fair enough! I wish I could have the energy to use a laptop and train some ML models. That was a large part of the degree I was studying for before I got hit with this marvelous illness. Anyways, cool idea! I really hope the advancement of ML and DL and other types of AI will help a lot in...

Nominate this charity to get extra funding, takes 60 seconds :)

Given these numbers, I wonder how accurate that 3.3 million figure that CDC published is. Although they asked patients if they “still have ME/CFS” in the CDC questionnaire, am unsure if this one counted only those who had been diagnosed and not those who said they still had.

Wish I had some distant connections or idea how to contact melinda haha…

I don’t think he’s on here but if your serious about doing a decent project out of this you could contact Ror Preston, he might have some good ideas/feedback. He’s an ME patient and data scientist who is currently working on Visible (tracking illness progression and PEM through heart rate...

I really think this is important. I know this isn’t referring to ME but lingering symptoms but I still feel drawing with a personal experience is relevant. In my experience, I suffered from many symptoms after a viral infection but not fatigue. It took about 1 year and me becoming very severe...

Long Covid Teachers Join Forces to Sue Ministers - Schoolsweek https://schoolsweek.co.uk/long-covid-teachers-join-forces-to-sue-ministers/

Also if I’m not in PEM it’s pretty easy for me to recall what I did in the past 10 mins. If I’m approaching PEM, I will have a blank.

For me, getting easily irritated, stressed, or emotional means pem is starting soon.

Also this open source Deep Learning Model exists which tracks fatigue based on facial expressions. I don’t know how good it is though: https://github.com/Sreyan88/Fatigue-Detection-using-Deep-Learning

This paper may be of interest; A comprehensive review of approaches to detect fatigue using machine learning techniques https://www.sciencedirect.com/science/article/pii/S2095882X21000487

Sidenote, I only had the energy to skim through and not read your entire blog, so I’m sorry if any of the comments I made were redundant :).

@forestglip Instead of making a Machine Learning Model using your face and manually labelling it, which would take large amounts of energy and time, and only be usable for you. You could use one of the many open-source emotion detection ML models. You would have to run this model a few hundred...

Found this article when looking psychwashing: Psychwashing: When Employers Use "Well-Being" To Hide Workplace Business As Usual Corporations are racing to adopt the language of the mental health movement. But is this anything more than a veil to cover up the deeper problems within the modern...

Thanks! Ref 89 leads to an interesting looking german study on doctor patient relationships in pwME. https://pubmed.ncbi.nlm.nih.gov/38062324/ I’ll be happily reading it when I have more energy.