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It looks like these studies are all going to be rather small, but seeing so much biomedical research funded is exciting. Way to go, Vienna. Funnily enough, if I never got ME, I would still be living in Vienna.

Researchers say an AI-powered transcription tool used in hospitals invents things no one ever said - Associated Press Tech behemoth OpenAI has touted its artificial intelligence-powered transcription tool Whisper as having near “human level robustness and accuracy.” But Whisper has a major...

Though it would change everything if we can get that attitude into a speciality, and they “adopt” ME, start properly teaching it to med students in said speciality etc.

What are thoughts with “immunology”? I’ve never seen an immunologist myself, but since it appears the immune system likely has something to do with ME, and I’m guessing immunologists aren’t as conditioned as neurologists to psychosomatise (via FND proxy) they might be a relevant specialty?

I found this essay by Hedva to have some bits that I can strongly relate to as having ME. I’ll quote them down here. You’re welcome to read her full essay, which does include some political parts so I will ask we only stick to discussing the parts related to ME and Chronic Illness in this...

When I get the flu it means I’m at best going to crash for two months or at worse permanently worsen. I would say this theory has a chance of being biased by the fact people who feel better mingle and travel more thus they are more likely to get viruses.

Moved posts Is this just a you thing or have other people who tried this had noticeably positive reactions?

I feel like well done place for people with very severe ME would actually take more of a nursing home type setup than a hospital.

Interesting to see this in a Russian Journal

I wonder if we wouldn’t have found a “cheat” medication that vastly increases your PEM threshold in that case. For example if it was heart rate, beta blockers.

I my experience it is. In thay any long term worsening of baseline by them is pratctically the same. However immediately after the trigger, the symptoms flaring might be anlittle different depending on it.

Yep. When I’m in denial and pretend PEM doesn’t exist, it still happens. There’s no reflex forcing it to happen. The only reflex is resting when you know it’s going to happen so it lasts less long. But that is separate from the PEM itself.

It really does feel like a cult/pyramid scheme in some ways. They are saying to recover you need to do more and stop thinking about your symptoms? Everyone who recovers will do more, since they aren’t functionally limited anymore, and anyone who recovered won’t think about the symptoms anymore...

Not sure how much I can say because the article is quite political but I really enjoyed reading it. Thanks to George. Also my father was a fan of Monbiot before I even got ME, and I think Monbiot writing these articles is making my dad more interested in the activism side of ME/CfS which is...

I think it was a general take it after you’re infected survey but maybe. I don’t have the energy to fully read sadly.

10-30% of the population reporting Long COVID is a really high number given this has a sample size of 74’000. To compare I think it’s something like 5-7% in the US.

Yeah I’ve seen that group but I’m really skeptical of trying a drug that has a large number of people saying the drug made them worse over a long period. So I’m waiting for a properly controlled study until I consider.

That really doesn’t sound like something we’d do in Switzerland. Though I have no medical experience so what do I know. But culturally doctors are very highly regarded and would never ask patients this kind of stuff. I obviously wish/hope they do do it. I have to note I appreciate the “no...

In Switzerland, a Long COVID treatment trial for a potassium channel blocker had to be discontinued because most of the patients interested were of too poor health to undergo the cognitive testing and trips required. From AargauerZeitung (in german) (translated) Researchers from the University...

Even if PEM were in a sense “made up by the brain”. It would **not** be advised to push through it. If these doctors ever listened to patient experiences. They’d realise PEM and the threshold for triggering tends to get lower the more you trigger it. Now if PEM was made up by the brain, you...