Search results

Bias, prejudice and “tradition” win. The medical system won’t face the truth until it wants to.

Paul doesn’t seem to be opitimistic based on what he’s heard :(

@forestglip if interested, controls are sedentary

If I had the energy, I would. I hope someone does.

Also the study seems to be ignoring that people who had prexisting health conditions were more likely to develop long COVID? Also, people who used reddit to discuss chronic health issues pre-pandemic will be more likely to use it to discuss their long covid, than those who used reddit without...

This makes me highly uncomfortable. I have some pretty vulnerable posts I made on the specific forum they analysed at the beginning of my illness. But what makes me uncomfortable is that they then went on to analyse users post history outside the forum. I doubt they asked the moderators if...

Reminds me of the “are you a terrorist” box you have to say no too when entering the US.

Oh yes I get that too, and I can faint. My point wasn’t that there aren’t no hard limits in ME, but that pacing does not use hard limits, and is not a hard limit in itself.

I think the confusion in ME is that pacing is “subjective”, it isn’t a hard limit, but it is necessary to avoid worsening. I can legitimately do a lot of effort. There is nothing except a “hard limit” of fainting stopping me in the moment. What will happen though is this will lead to my...

Useful to have a study for patients to have on hand as long covid patients are getting “FND’d” en masse.

I wonder if Maeve’s family could request (or demand) her image not be used next to such a piece?

Tweet from Todd Davenport

I know from experience with a friend (outisde the UK) that TPN was used for their late stages of ALS, as there were problems with PEG. Wouldn’t ALS count as a chronic disease. I feel like if these are truly the guidelines there would be a some preventable death from malnutrition in other...

I’ll let others answer about the inquest itself, but an excellent article to understand the situation is this one, extremely worthwhile read. (its about the situation in general and published before the inquest started)...

Isn’t TPN commonly used in cases of critical illness that don’t affect the gut? Or in some cases of severe burns?

Study took place from 2020-2022 (ending August 2022). What are the odds that a lot of the people who didn’t test positive for covid were false negatives? (Based on time range). I know I had to get tested three times when I first got COVID before the test came out positive. It’s not exactly...

I really have noticed this problem a lot (even by a lot of people with ME), and pretty much half of people who don’t know about ME think CFS = CF. In my opinion the only way to combat this is to make clear CFS on its own should not be used, and promote ME or ME/CFS. I have had this argument...

Yes I’m sure starving to death is “bothersome”. It’s such crazy discrimination I hate it.