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I don’t have the energy to look it up right now but I seem to remember reading about large studies controlled for various independent variables that found that chronic high noise exposure decreased life expectancy and increased suicidaloty.

By the way you could make the S4ME mastodon account visible and followable from bluesky by using bridgy (free and open-source). All you have to do is follow this mastodon account @bsky.brid.gy@bsky.brid.gy and s4me will automatically have all its content relayed to bluesky. I’ve tried it out...

Article in Swiss news about 12 year old with Long Covid who is unable to attend school (in german) https://www.nau.ch/news/schweiz/coronavirus-12-jahrige-kann-wegen-long-covid-nicht-mehr-zur-schule-66785816 Claude AI english translation: Highlights: * Talks about exercise intolerance and...

Nice to meet you! Welcome :)

Perhaps a confusion of the vagus nerve (which I seem to recall going through the left ear) and a vein?

If that actually goes through, beats most ME studies who find something interesting in a tiny cohort and then never get replicated. Agree with the in ear ≠ in head comment though!

The line between psychiatric and neurological seems extremely arbitrary.

I’m scared they’ll approve a couple beta blockers for post-covid POTS, figure out some specialised care for COVID related organ damage, conclude that most people with other types of long covid get better with time, and call the program a success. Without having found anything for ME/CFS subtype.

* in mice and fruit flies Interesting that they got the results using covid

https://bsky.app/profile/exceedhergrasp1.bsky.social/post/3kx3zy4bhkk2k From Bluesky: Jamie Seltzer announced she will be a panelist at the Washington Post event.

I think this was said in another thread, but it’s “shrödinger’s somatic symptom”. When it is used between professionals, it nearly always means psychogenic, but when a patient asks what it means, the doctor will say physical.

But right now we’re basically throwing anything and everything at the wall. Maybe we should spend more resources looking for sticky things to throw at the wall instead of throwing them all. ie. more basic biomedical research less big trials of drugs that will likely fail (unless its funded by...

Yep exactly. When I was bedbound, but still able to tolerate talking and light and such, I had care credits to have people help me with cleaning, I also had a mental health nurse I got to speak too once a week etc. Now I have absolutely nothing, not even communication with a doctor, because I...

Very happy to see you mentioning the “adrenaline dump” or “adrenaline rush” phenomenon a lot of us experience. It’s criminally underreported in the lieterature, I only know of one ME study in english that mentions it, and mostly in passing.

Yep. For me when I hear too loud a sound or too loud a light. The symptoms I get are the exact same as if I’d just pushed myself too far physically in another way. It’s my “PEM warning sign symptoms” and sure enough, the next day, I crash.

I imagine you’re mostly aware, but the field of psychiatry along with psychology has a history of wrongly psychologising ME/CFS. So a lot of us are skeptical of what comes from it.

It may be different for different people, but in the large majority of people I’ve talked to sensory sensitivities in severe ME is directly because of PEM. Having too much sensory input directly causes PEM and worsens the condition. @JemPD had an excellent comment explaining this here...

It really depends what your definition of pacing is. I’ve seen pacing used for so many things from “try to gradually increase your activity levels while minimising crashes” to “only do 30% of what you think you can do”. I think in general it’s about minimising PEM.

I do know that it is not unheard of for people on the milder end of the spectrum who have already lived a decade or more with the disease, to manage really long stretches (like multiple years) without triggering PEM. Also “avoiding crashes as a treatment” might generally fall into the term of...

In relation to the LC is way more severe than ME point: To me it sounds like he’s more interested in covering the NIH than anything. He was just trying to find a random argument to back the point that long covid got so much more research funding than ME. I’m unsure he actually believes what he...