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  1. NelliePledge

    [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?

    Anyone with less severe ME will be trying to return to work in their existing job starting on reduced hours and many will not be able to achieve that.
  2. NelliePledge

    [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?

    I’d expect a substantial minority 30? to have had a gradual onset and would have been Ill for years rather than months before getting a diagnosis.
  3. NelliePledge

    Too Tired to Move: Long COVID in Clinical and Population Settings - presentation at American College of Sports Medicine's 2024 annual meeting

    Exercise is medicine…… Ok then Medication can be deleterious in the wrong circumstances Exercise can be deleterious in the wrong circumstances
  4. NelliePledge

    2024: Twitter campaign aimed at John Oliver and Jon Stewart

    Obviously they would pick up stuff from social media to use in segments but I always wonder about trying to catch people’s attention using social media. Are people emailing them/ contacting the production companies as well? Dunno if any people with connections in journalism might be able to...
  5. NelliePledge

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    The psychosomatic proponents have effectively sucked up government research funding as well as dominated guidance on MECFS until very recently. They are trying to get in on the long covid bandwagon it may be more difficult because it affects medical professionals but it’s only been 4 years so...
  6. NelliePledge

    "Updates on long Covid and the brain" (The Psychologist, The British Psychological Society)

    BPS as in the Psychological Society presumably? Oops Sorry just seen the thread title
  7. NelliePledge

    UK:NHS: Feel Good Tennis for Long Covid

    Who gets the advantage :whistle:
  8. NelliePledge

    UK:NHS: Feel Good Tennis for Long Covid

    Psychosportbabble
  9. NelliePledge

    Illness perception in functional neurological disorder: low illness coherence and personal control 2024 Joos et al

    Are the participants informed their “illness perception” is the subject of the research they are taking part in. I wonder if anyone has researched participants perceptions of the papers written using their data.
  10. NelliePledge

    Review Inflammatory Markers in Children and Adolescents with Functional Somatic Disorders: A Systematic Review 2024 Hansen et al

    There’s been other papers posted I think “linking” inflammation and “functional” Tripe
  11. NelliePledge

    Diverse immunological dysregulation, chronic inflammation, and impaired erythropoiesis in long COVID patients with chronic fatigue syndrome, 2024

    Sorry for stating the obvious but might help others that erythrocytes are red blood cells (I had to google it)
  12. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Only 38 signatures from 11k now looks likely to go over that hurdle by the end of May
  13. NelliePledge

    David Tuller Crowdfunding starts May 1st 2024

    It’s on 80% now £52k.
  14. NelliePledge

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Nobody has ever suggested LP to me. I think most people are aware that I keep up to date with developments and if something was a good idea I’d be all over it already. I think Parker probably does pretty well using methods where LP doesn’t get any negative comments like paid Google search. And...
  15. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review 73 short of 11k now 10,927
  16. NelliePledge

    Long COVID-19 Enigma: Unmasking the Role of Distinctive Personality Profiles as Risk Factors, 2024, Amsterdam et al.

    They should just go off into a corner and spend their time analysing the personality profiles of psychosomatic proponents
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