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  1. NelliePledge

    Rating scales institutionalise a network of logical errors and conceptual problems in research practices, 2022, Uher

    Bit of light reading for T Chalder et al.
  2. NelliePledge

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    https://www.s4me.info/threads/risks-for-developing-me-cfs-in-college-students-following-infectious-mononucleosis-a-prospective-cohort-study-2020-jason-et-al.18380/ Is this the one?
  3. NelliePledge

    Values and value in patient and public involvement: moving beyond methods 2022 Laidlaw and Hollick

    This is a breath of fresh air in my opinion.
  4. NelliePledge

    Phantoms in the Brain - BBC radio programme on 'Functional Neurological Disorder'

    Yes @strategist tactical ambiguity but they take it to such levels that ambiguity is a default setting.
  5. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    If based on reality of actual care received it would be a very quick task
  6. NelliePledge

    USA: MEDvidi website

    team@medvidi.com
  7. NelliePledge

    ME/CFS and Post-Exertional Malaise among Patients with Long COVID, 2022, Jason et al

    Yes I agree symptoms are difficult to unpick. For example I knew I had to lie down on the sofa after work 5 hours sat at my table at home but as I never had any lightheadedness or falling down I also was pretty sure I didn’t have POTS. it was a slow process of understanding that Orthostatic...
  8. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    They should send a letter to every Integrated Care Board with the same question.
  9. NelliePledge

    The relation between cognitive-behavioural responses to symptoms in long term medical conditions & the outcome of CBT for fatigue, 2022, de Gier

    Thanks
  10. NelliePledge

    The relation between cognitive-behavioural responses to symptoms in long term medical conditions & the outcome of CBT for fatigue, 2022, de Gier

    GGZ?
  11. NelliePledge

    The relation between cognitive-behavioural responses to symptoms in long term medical conditions & the outcome of CBT for fatigue, 2022, de Gier

    Transdiagnostic is it me or is that their latest buzzword
  12. NelliePledge

    Low resting heart rate / Brachycardia

    No idea I wasn’t spoerty and until fitbits became a thing I didn’t even count steps. Possibly if fitbits had been a thing when I was in my 30s when I last was able to do any serious discretionary exercise as opposed to moving as part of a daily living or social activity I would have got one.
  13. NelliePledge

    Vegetable prep - seeking suggestions

    What country are you in? in the uk I can buy a frozen mix of peas broad beans and French beans which is quite good - sainsburys I also buy frozen leaf (not chopped) spinach and French beans, broccoli to avoid waste. Frozen peas are good, I prefer petits pois rather than garden peas. I can’t...
  14. NelliePledge

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    They always bring exercise into it. Pacing isn’t structured it’s about changing how you do normal stuff in a less demanding way, when you can manage to.
  15. NelliePledge

    Covid-19 vaccines and vaccinations

    It’s an adjournment debate these are always short. The Hansard link shows the full thing it’s not just a speech from Bridgen there’s a response from the Minister. In this case it’s Maria Caulfield (a nurse who worked on Covid wards)
  16. NelliePledge

    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    No evidence just some support
  17. NelliePledge

    Article: The mystery of 'needle spiking', social panics, and mass psychogenic illness

    He must live in a glass house
  18. NelliePledge

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    Just tagging in @dave30th to make sure he knows about this
  19. NelliePledge

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    Prof Matthias Kohl looks a good collaborator to have - mathematics of biology and medicine
  20. NelliePledge

    Long Covid in the media and social media 2022

    Similar data was in the UK ME Association report on their patient survey.
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