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  1. ladycatlover

    What does MS fatigue feel like? (Aug 2, 2019) by Jennifer Huizen - Medical News Today

    I see they use the same kind of useless pictures as articles on ME do. :rolleyes:
  2. ladycatlover

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Test Your Strengths and Gaps in Knowledge Authors: Nancy Klimas, MD

    Well, that was fun! I earned my credits even though I got most of the drug questions wrong (I know very little about possible drugs for ME and mostly discount them anyway). I agree with @alktipping about the sleep hygiene stuff. Load of dross, that bit. My feeling is that it might be useful...
  3. ladycatlover

    Hearing things?

    After 2 years of staying over half the year in this caravan I still can't get accustomed to the noises here, especially when it's windy, and it sure is today! I think I hear cars coming into the field, and jets going over. While both these things do happen, I imagine it a lot more when it's...
  4. ladycatlover

    United Kingdom: Science Media Centre (including Fiona Fox)

    Any chance of adding it to the way back machine or whatever it's called? (sorry very sleep deprived over several days so brain went walkabout - forgotten what name of the thing that saves thing so it doesn't get lost)
  5. ladycatlover

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    Oh, and I see a suggestion the people in South Wales go to Bath (in one of the links) for help/treatment! :wtf:
  6. ladycatlover

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    This paper is from 2014, I wonder if anything came from it!: https://gov.wales/sites/default/files/publications/2019-03/myalgic-encephalopathy-chronic-fatigue-syndrome-me-cfs-and-fibromyalgia-fm-task-and-finish-group-report-and-recommendations.pdf seems to me the person who put up the petition...
  7. ladycatlover

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    I couldn't even get onto their website. It had some sort of animation of squares going in and out in the middle of the screen but nothing else came up. It also froze my browser and I had problems shutting down the site when when it had finished "loading". I find this worrying (and should prob...
  8. ladycatlover

    When to see a doctor about loose stools?

    I can't help you @Sarah94 as my problem is more the opposite of yours. :rolleyes: But I'm really glad that you felt able to talk about it here, and I very much hope you get some helpful replies. It's horrid to be worried about changes to our bodies but finding it so difficult to actually get to...
  9. ladycatlover

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    And likely to cause significant harm to at minimum "some" children and adolescents (to my mind "some" is more than "a few" though even a few is too many). My guess would be over half unless they're using mis-diagnosed kids. They are so keen to "prove" that they are right, and have THE answer...
  10. ladycatlover

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    Hmm, National Academic Foundation Conference... How you can attach the words "University of Bristol" to that is beyond me. :rolleyes:
  11. ladycatlover

    Perspective: Cell Danger Response Biology—The New Science that Connects Environmental Health with Mitochondria and the Rising Tide of Chronic Illness

    I think this paper puts very clearly the difficulties the whole human race (not just us sickies) is facing. It backs up a lot of the stuff I skimmed on Chemical Sensitivities on work experience when I was trying to do an Applied Psychology degree. (skimmed because too much stuff to read in...
  12. ladycatlover

    Developing a better biopsychosocial understanding of pain in inflammatory bowel disease, 2019, Moss-Morris et al

    Dear lord, when will these idiots ever stop? They're trying to take over the whole of medicine! Moss-Morris, that explains a lot. :mad:
  13. ladycatlover

    A neuro-inflammatory model can explain the onset, symptoms and flare-ups of ME/CFS, 2019, Mackay

    But the Oxford CFS "criteria" were very loose - they'd pick up many people who were depressed and/or "tired all the time" for any reason, once they got the CFS label they were on a hiding to nothing getting more tests to see what was really going on. Unless they had stellar GPs. So anything...
  14. ladycatlover

    #MEAction Scotland News

    Sharpe spent time in Edinburgh. I think in the 90s? So not really surprising that NHS Lothian just loves PACE. https://en.wikipedia.org/wiki/Michael_Sharpe
  15. ladycatlover

    Blood pressure monitors and how to use them; taking a blood pressure measurement; continuous monitoring

    I haven't had my BP measured very often, but I have noticed that the automatic ones bloody hurt. And pinch too sometimes. But my experience is only about 4 or 5 times - hardly ever visit doctor, last time was over 2 years ago when trying to get evidence for my PIP Tribunal. Oh, and walk in...
  16. ladycatlover

    'Women have been woefully neglected': does medical science have a gender problem? Dec. 18, 2019, Nicola Slawson, The Guardian

    'Women have been woefully neglected': does medical science have a gender problem?
  17. ladycatlover

    FOI request re PACE Cost-Effectiveness Analysis

    How many aeons will that take? Christmas is coming, then New Year, I bet they're all on holiday already. I imagine you won't get a sensible response before Mid January at the very earliest. Though obviously I hope I'm proved wrong.
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