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I made a rare foray onto Facebook the other days, and saw five ads for DecodeME (three from the project team, two that others had shared). The last push seems to be working well. I also shared them, of course, but as I almost never post anything except occasional replies to other people's...

It's not about safety, as Jonathan says. It came in as the result of the EU regulation on the reduction of mercury use for environmental reasons. The British Dental Association says they don't know the reason for the restriction in children: Even the MEA dentist makes it clear that his...

I imagine the impact on NICE will be someone briefly rolling their eyeballs, so I plan to add the article to the gargantuan heap of crap I can't even remember happening.

As fas as I know, white fillings are available if they're on your front teeth or if you have a proven sensitivity to one of the metals used in silver amalgam. I imagine that's quite rare. My dentist told me white fillings don't last long if you have to chew on them, so using them on a back...

Now published - link here ******** Preprint From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences with inpatient rehabilitation for long/post COVID, Hammer et al [full text in German only] Abstract...

Also from @MSEsperanza: This appears the study mentioned in the annual report of Kliniken Schmieder group (Germany) -- see this thread: https://www.s4me.info/threads/germanys-kliniken-schmieder-group-2022-report-on-long-covid-research.35731/ Some quotes from the paper's discussion section...

From @MSEsperanza: Prominent Fatigue but No Motor Fatigability in Non-Hospitalized Patients With Post-COVID-Syndrome Abstract Objectives: Fatigue is a frequent and often disabling symptom in patients with post-COVID syndrome. To better understand and evaluate the symptom of motor fatigue in...

Sounds like good news, though!

I can't answer the question because I don't even now anyone with direct experience, but I must admit performative healthcare was largely what I expected when they announced treatment clinics for something without a treatment. I'm sure that's unduly cynical in some cases, but...

I'd say it probably indicates that there isn't anything else to try. But what's behind my unease is that it's not getting funding and running trials that's the difficult bit. They could buy in that expertise, there must be thousands of researchers in the US who've made that journey with other...

That's a really valid point, but I'm a bit worried about the ethics of getting the experience this way. These drugs aren't benign and there's little to suggest they work for substantial numbers of people, and whilst I can see the arguments that it'd be useful to put LDN to bed once and for all...

I guess the difference is that in socialised healthcare it's not really the patient calling the tune, and in some respects it's not even the doctor. It's true that GPs/primary care physicians have prescribed some classes of medication off-label, e.g. antidepressants, but for many meds either...

Yes, I've given by debit card before. Just done my donation, and it looks as if any Visa or Maestro card will work.

I agree. I don't know anyone who's tried it, or even how on earth you'd go about getting it prescribed. I can't see any GP agreeing to it on the basis of zero evidence, not least because they'd probably be at risk of GMC sanctions.

From @MSEsperanza: (Not a reply on Mastroianni but thought it could serve as a comment. Sorry it's pessimistic.) James Heathers: The Right to Be Wrong Isn’t The Freedom From Consequences And From Where Consequences Might Arise...

At its simplest that's right, as clearly many sick and disabled people couldn't reasonably be asked to do any work. But in some cases employability needs to be taken into consideration as well as capacity. Before my memory really went down the tubes I might have been able to do a couple of...

I think those huge billboards are a good idea, as nothing else has that much visual impact. The best ones are positioned where traffic tends to back up at busy periods. I can still visualise some of the posters I saw on my way home from a job I left in 2013, as I spent at least five minutes...

So many people have been sexually assaulted that, depending on the definition, it's possible any associations simply reflect general population trends. I don't know about men, but it's a pretty normal experience among women of my generation. The majority don't involve rape or significant...

It was reported in the paper the other day that Labour has said they won't implement this. They've said other things then rowed back on them, of course, so there's no guarantee, but my MP said that a lot in the parliamentary party don't like the proposals at all. For those who currently have a...

Obviously they may be able to get some ideas from the way DecodeME was set up (some of the approaches could potentially help even with a much smaller trial), but folk here might be able help by offering feedback – their research question, the way they hope to recruit, the screening tools, the...