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  1. Kitty

    Covid-19 vaccination experiences

    I might only have been told because the pharmacist at Tesco was trying to decide which one to give me. The one I had is for over-65s, and I'm not 65 yet but am on the 'potentially at higher risk' list. Anyway, the vaccine's called aQIV according to the bit of paper I was given. If I'd been a...
  2. Kitty

    Covid-19 vaccination experiences

    I prefer to get them separately too. If I did have a bad reaction, at least I'd know which one caused it. I had my 'flu jab last week, the first time I've had the version for older people designed to provoke a stronger immune response. I felt it this time, too. Nothing specific—tiredness...
  3. Kitty

    UK - Energy - suppliers, costs, grants, meters etc

    Yes, most of them are set up like this. Some people do find it useful, as it enables them to work out whether there are things draining power when they shouldn't be, and how efficient "always on" appliances such as fridges are. It also means folk can also take part in the power-saving schemes...
  4. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I did too, but mostly because I hadn't really got my head around the full implications. It made me realise I've probably never had a WCA because they already knew from my DLA assessment that I'd qualify for the support group under the mobility aspect. That would go if the proposals are enacted...
  5. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    This. Many of those women will not be receiving £10.5k a year each in pension, and paying in tax and NICs. My neighbour's struggling by on slightly above minimum wage, but she's still chipping in over £2.5k a year. There are said to be 3.8 million women affected by the age change, and even...
  6. Kitty

    Platelet factors attenuate inflammation and rescue cognition in ageing, 2023, Schroer et al.

    From @MSEsperanza Comments on PubPeer: https://pubpeer.com/publications/E00A94EC765628B7CB7F54DA36C434#2 (I now have the PubPeer browser extension installed and a note and link to comments there pop up wherever papers are cited -- including S4ME and papers' references. Thread on PubPeer see...
  7. Kitty

    Sewing and accessible sewing machines

    I just daren't watch, because it'll set me off on ambitious projects I can't finish. :laugh: I already do more than is ideal, so I know what'll happen: I'll run out of juice, the machine will sit in the middle of the room until I eventually have to move it to clean the floor, and my...
  8. Kitty

    Sewing and accessible sewing machines

    Most people who sew regularly tend to have more than one machine, because it's easier to keep them set up for different things. It can start with a nasty case of SMAD (sewing machine acquisition disorder) as you try to find The One, until you realise it doesn't exist and different mechanisms...
  9. Kitty

    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    [My bold] I expect having to drag yourself out of the house and move your body much more will do that, even as it's making you feel worse.
  10. Kitty

    Sewing and accessible sewing machines

    The conversation prompted me to search again for one of the models I've been looking for, and what's made me happy today is that I found a very good one for £40. Thank you all for talking about it! :laugh: It's a 100-year-old Jones tailors' machine, with a vibrating shuttle and a harp space...
  11. Kitty

    Thesis Distress and coping in ME/CFS: Understanding the role of perfectionism and self-compassion, 2022, Houston

    It reads to me like an honest attempt to compare studies of coping strategies. The trouble is that it's based on assumptions that aren't even questioned, on references that appear to be baloney of the first order in some cases, and on an online survey of people with self reported ME. It's an...
  12. Kitty

    Information leaflet on ME/CFS and children/young people either for patients or for doctors?

    It depends what system you're using—I think it's quite easy if you use the Adobe printer on a Windows machine, as you can alter the settings in the document properties. It's a while since I used Windows, but the Adobe website might have better info. If you're on a Mac, rather than using the...
  13. Kitty

    Sewing and accessible sewing machines

    If you're okay using a pedal, Ian, you might do a lot better with a reconditioned old machine. Many of them will happily do decades of recreational sewing with very little attention. Sewing machine engineers tend to be specialists who know what they're doing, so you'd just need to check that a...
  14. Kitty

    Thesis Distress and coping in ME/CFS: Understanding the role of perfectionism and self-compassion, 2022, Houston

    They're probably just responding to the way they're taught. A person with any insight at all would ask them to consider the difference between perfectionism and doing a thing in the perfectly ordinary (and maybe even slapdash) way the respondent was used to pre-illness. But this is a...
  15. Kitty

    News from Germany

    @Midnattsol, a follow-up message from MSEsperanza:- The reference that was asked for is: Bertelsmann Stiftung; BARMER GEK (Eds), Gesundheitsmonitor Nr. 2/2016: Informierte Patienten und unzureichend vorbereitete Ärzte...
  16. Kitty

    News from Germany

    I don't know, to be honest, I posted it on behalf of @MSEsperanza. It's paywalled for me too, so I've only been able to read the quoted and translated parts.
  17. Kitty

    News from Germany

    Follow-up post from @MSEsperanza. Adding to the post on IQWiG's preliminary report above: I think the issue should not be 'shared decision making' but 'informed decision making' -- as long as patients are able to make decisions, they have to decide, not the clinicians. The clincians must...
  18. Kitty

    BMJ — Long covid: the doctors’ lives destroyed by an illness they caught while doing their jobs

    Too late, though. They've now discovered the extent to which medicine is a survival of the fittest profession: you're in it until you stumble, and then, instantly, you're nobody.
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