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Nice touch. :laugh:

As usual I wasn't very clear. I meant they're unlikely to get the media to listen to their caterwauling again, but I'm also a bit more optimistic about reducing the potential for treatment harm (at least in the medium term). Long Covid has increase understanding of concepts like pacing and PEM...

"...which offers even fewer opportunities to put a good case than the current review form, because there's no group whose awards we'd like the chance to cut more than people over state pension age. If they have to abandon an appeal partway through due to ill-health or lack of support, or they...

Yes, and surely this has to be the final bleat of the expiring sheep. The story's only just relevant enough to warrant small items run online for a few hours, and not only is it full of holes, it's the only one he's got. It's unlikely he'll get it up on legs again.

I've been trapped in a never-ending circle of PEM with it for about the last 25 years, it drives me nuts. It only strikes me quite how unable I am to keep still when someone else comments on it, or if I stay in the caravan with my sis (where the sounds of moving about seem to be amplified...

I wish Stewart Lee (comedian) or Marina Hyde (political columnist), both regular Guardian contributors, had the inside track on this story. I'd pay good money to read one of their scathing, hilarious commentaries on this crew and its antics.

But for some people feeling better would mean less pain, which would obviously reduce their movement. They'd be able to sit and relax between doing things, instead of constantly being driven to move their legs and shift their sitting position, or get up and totter about for a couple of minutes'...

As for step counts: I've run into major accuracy issues with pedometers worn on both the wrist and the leg. My ankle-worn pedometer thought that fidgeting was walking. I'm constantly shifting my legs around due to pain, and I'd record dozens of steps when I hadn't even stood up. More recently...

Yes, the principal feature of a co-production is usually that the partners are not in the same organisation. Otherwise it'd be called a project, a programme, or whatever.

To me, the most plausible explanation for the lack follow-up is that the researchers discovered it might be.

Really sorry to hear that, @wastwater. One decision can unravel everything, and even if it's eventually overturned, I know from experience that it's an absolute ordeal to go through. I hope you're okay and you're able to manage an appeal.

This is the only study I can think of—it tests young people before they develop ME symptoms and then again afterwards. It's looking at the potential links between infectious mononucleosis/glandular fever and ME. I don't have enough knowledge to understand whether their blood test results would...

I've only looked at the slides so far, but they're excellent. It's really good to see the inclusion of mobility equipment as a potential way to conserve energy. Hopefully the video will help shift the narrative a bit. We need friends and family to understand that being good allies, especially...

There could be more than one factor, including timing? I can't remember all the questions, but given that I was invited to take part despite having another chronic illness that causes fatigue, it may have been deemed irrelevant because the questionnaire showed I'd had ME for 35 years before the...

It must be so incredibly hard to shield for that long, I really feel for you. I eventually gave up the precautions, because I got to the stage of wondering whether getting Covid was likely to be worse than spending over two years working as hard as I was at not getting it. I'm only moderately...

:eek: I did miss out asking whether dogs might be able to differentiate between people who have ME and people who don't, though. That's every bit as interesting a question as the PEM/not PEM one.

I only watched the presentation from where @Trish left off, as I haven't the energy to do it all today. But the discussion is really interesting, the discipline is good re. only one person talking at once, and more was probably said than I managed to scribble down.

Third question: increasing amounts of research showing connective tissue disorders, eg generalised hypermobility and Ehlers-Danlos syndromes, and hormonal disorders such as polycystic ovary syndrome, present increased risks of long Covid. Yet list of groups eligible for vaccination remain...

Second question: we're told long Covid is affecting the workforce. Covid is still circulating, people are catching it multiple times, one in 20 people who catch it develop long Covid, and the UK isn't currently vaccinating most of the population. When will we reach a tipping point when the...

First question: Should we define two groups of survivors along the lines of (I'm paraphrasing) those with ME-type chronic illness, and those with a post-Covid injury such as lung damage? Panel: Not a good idea. Several reasons given, including it being difficult to define how to separate them...