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I wonder if the Mayo Clinic is the same clinic Hillary Johnson originally writes about in 1989 but calls the "Dubois" clinic in her recently published piece called The Citadel: https://www.oslersweb.com/ "Only the names and locations have been changed...a world-renowned multi-specialty clinic...

Excellent clarification @Hip thank you.

If I had fewer morals and weaker ethics, I'd get into the psychosomatic industry. There is much money to be made, reputations to be built, and careers to be advanced, by pushing forth a psychosomatic view of what ails you, especially for ME, as the great success of Sharpe attests. It must be...

@Hip If EVs mutate, would this mean that a patient would need to take multiple anti-EV meds to be effective, similar to how HIV+ patients need to take 3 (or more) ARVs to keep HIV suppressed? In other words, would EVs mutate 'around' a single anti-EV med, rendering it ineffective? (like with...

I watched most of the first episode - I suspect that if a lay person watched it, they may have the impression that ME is psychological as there was no definitive statement that ME is biological and they way her symptoms are played out could be interpreted either way. I knew what she was talking...

Ugh. (I deleted my original stream of expletives.)

I concur. My guess would be this is a learned behaviour at the feet of their parents. They were likely taught this overtly and covertly, and internalized it. For some it may seem like a fait accompli. Like you, experientially I find it impossible to identify with that mindset. But based on my...

Can an individual (not physician / researcher) attend that conference? Or better yet, a group that can respond in some way? I'm attending the Medical Psychiatric Alliance conference this fall and plotting.

Awesome Mike. Good media for ME is priceless. Thanks for your ongoing exertion for ME folks!

Frightening how they dress up medical torture as treatment. Especially this: "Those children who are unable to work through their AMPS pain and restore function over time with an outpatient treatment plan may require a therapeutic hospital treatment program for AMPS."

A friend told me the other day that physicians have the highest suicide and drug use rates. I haven't checked the accuracy of those statements.

The 5 reviewers wrote their decisions, but we're not allowed to share publicly.

Short answer: Funding denied. Our Facebook post: .......................................................................................... Health Canada Denies ME Research Funding...Again .......................................................................................... Funding for...

Sorry, I'm not permitted to share the application or the reviewers' comments.

Dr Moreau headed the application.

There was only one application for the grant. Applications must score at least 3.5 (out of 5) to be eligible for the funding. The application did not surpass that threshold. Funding for ME research in Canada is now zero dollars. Canada has over 580,000 diagnosed with ME - the highest ME rates...

"...do we have a situation where a massive new initiative is being rolled out to promote therapies with exaggerated efficacy for the purpose of combating an imaginary epidemic, at the same time encouraging doctors to overlook and under-investigate genuine pathologies?" The sad, frightening...

Isn't the opposite likely more accurate? Lots of people probably died from ME, but Merryn is only the second to have it on the death certificate.

Isn't the research in... "social, behavioural, and environmental determinants of health" ...already well known to be... "a lacklustre approach to research integrity. Research misconduct, questionable research practices, and a reliance on publication numbers as a metric of academic success"

Yes, when I interviewed Dr Hyde in Montreal he recounted that McEvedy cognac-soaked meeting (as well as dramatic near-death experience swimming with the Trudeau family in Russia, iirc). From Hyde's book: "I have no doubt that Willy Beard, the insurance physician organized the entire PhD. His...