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Today I received an early proof edition of Dr Byron Hyde's new book - Understanding Myalgic Encephalomyelitis - I went directly to chapter 9, titled: The Role of the Insurance Industry and the Ongoing Vilification of ME Dr Hyde shares an account of attending a lecture on ME for physicians...

Just left a comment to encourage Stat News to do more ME stories: Excellent issue to bring forward. After exposing the fraudulent ‘researchers’ that produced the fake data that insurers rely on to deny benefits to people living with ME, the next battle is with profit-making insurers who view...

So we have the MUS brigade making inroads toward denying patients with physical symptoms appropriate medical testing, while at the same time researchers essentially finding that some 'medically unexplained symptoms' are really 'multiple sclerosis symptoms'. How much do you want to bet the vast...

The first time I heard of 'chiggers' was visiting a small village in Malawi and the community members had collectively purchased 2 pigs - but they didn't have rubber boots to wear to feed and tend to the pigs and protect them from chiggers - all they needed to buy one pair of rubber boots for...

I managed to see the doctor in question, after making a very big stink and filing a Human Rights Commission Complaint. Initially I was refused an appointment and this was indicated in a form he had created that (iirc) specified 3 groups he would not see: those with a psychiatric diagnosis...

It seems to be a habit of (perceived) power: to control others' bodies, and to remove the individual choice. For the longest time it was the Church and government that controlled the bodies of the masses. Then along came medicine and they want a piece of the power to control our bodies.

Great succinct sound byte.

Sweeeet, thanks Art.

I'm interested in these Canadian references for a project I'm working on. I googled "Dr David Jameson wikipedia sciencewatcher" for pages from Canada but he didn't show up and I can't find any other relevant reference to him on Canadian pages. Do you happen to have any other info you can point...

My interest was piqued when a panicky Sir Simon wrote: "No peter don’t add to your blog This is private chit chat You have not asked my permission and I don’t grant it" But then I was hooked when he wrote: "does not need to be transparent and there is no public or legal right to make it...

I concur and disagree. Yes to a better sound byte, but for me, 'flare' is a mild term that detracts from the severity, much the same way 'malaise' does. Maybe 'activity induced disability'?

Last I heard, Ron Davis had yet to do RNA testing for enterovirus. Hopefully his team will get that done soon. Irrc, the other site to test for enterovirus is a gut sample. Or at post-mortem. Here, Dr Hyde states: "...vascular injury in the brain can be demonstrated in the live patient with...

From what I recall in a chat with Dr Byron Hyde (who contends that "ME is analog to polio", and the difference is the location of the enteroviral infection on the spinal cord), said that funding for enteroviral research dried up once the polio vaccine was widely used. Problem solved, right...

Fwiw, I grew up on a farm, so lots and lots of physical labour...or as I called it: child slavery. Endurance was never a problem. As an adult I got into triathlon (after a very successful career of partying) and that meant loads of swim, bike, run and weight training - and the triathlon culture...

Just in case any of those with Stats knowledge are interested... We're looking to hire someone to help us with a new tool we're building. The tool is designed to help non-statisticians get robust answers to questions using data. Our dream is that people will be able to drag and drop their...

Have yet to watch it, but given Dr Systrom's SFNP findings, this may be interesting...

How about: "Has the medical establishment been falsely accusing ME patients as 'militant'?"

It would seem the ME community needs to do an intervention with the medical community. The intervention could be called "Ignorant Conversion Therapy". (tongue in cheek...sort of.)

We're working on a project about medical harm, I hadn't heard of that one before - do you happen to have a reference handy?

I experienced that a few times immediately after a race: my throat (and tongue?) would swell up and then dissipate after about 10 minutes. After the first time, I would go and hang with the paramedics in case it got worse and they needed to epi-pen me. Exactly. Ignorance is dangerous.