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minimal information really we don’t know the full agenda - the topics & speakers to be able to ask focussed questions also not much notice for people with ME maybe it’s more just an informal round table meeting than a conference but the public facing side seems a bit of an afterthought

This refers to a conference “Fatigue 22” Anyone seen information about it?

And it’s also worth noting for example that the charity FNDHope is in fact a US charity https://fndhope.org/contact/ this is international issue, not just UK.

I use a folding stick. Helps with balance which gets worse the longer I’m out.

Just reading the title increased my hypertension :mad:

It’s in the original post on this thread

Hi All The moderators recognise that the involvement of Sajid Javid does mean there is some relevance to ME politics in the current Conservative leadership and Cabinet situation. However we ask that members don’t discuss and speculate about the current situation further as it inevitably leads...

https://appgme.co.uk/who-we-are/#members From the APPGME website t is a good cross party group of influential people so I think Carol Monaghan and others have done a good job. Sharon Hodgson spoke for Labour in the Westminster Hall debate and I believe the Commons debate, she was shadow...

Agreed. But there’s also guidelines implementation……

As @Suffolkres has highlighted through posts about Suffolk. NHS structure changes are coming in replaced CCGs. Here’s some info about Integrated Care Boards which are now in place from 1/7/2022 https://www.england.nhs.uk/integratedcare/integrated-care-in-your-area/

Here it is your favourite topic https://www.s4me.info/threads/cbt-repackaged-or-a-novel-treatment-the-lightning-process-compared-with-uk-specialist-medical-care-for-paediatric-cfs-2021-anderson-et-al.21335/

CBT has failed- from one of the horse’s mouths. Sharpe and Chalder will be crossing her off their Christmas card list.

See 1.6 in the Standards in public life holders of public office should be truthful

Yet more embarrassingly outdated thinking

Good grief. Even when I was first diagnosed or undiagnosed I wouldn’t have managed that. I was working 4 days a week when undiagnosed.

for those of us who haven’t managed to watch the video what do the columns represent?

I’ve done hypnotherapy in the past with a few different people. it’s pretty much like a guided meditation with a bit of counselling thrown in. I found that it did make me go to a deep relaxation verging on sleep which felt pretty good during the session and afterwards. The suggestion side of...

I’ve met a fair few overweight people with ME online especially the ones in 40s/50s. There are people at both ends of the spectrum of weight as in the general population. Possibly indicating sub groups of ME? But we don’t know enough about the course of ME and progression, severity...

PNEI?

Many people from specialist professions struggle with this to be fair.