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Yes it seems tricyclics are one of those things they throw at the wall to see if they stick

Good spot @Art Vandelay i know a lot of people get benefits for depression from SSRIs. but I seriously question whether there are benefits from tricyclics (other than being sedative (ugh) ) as a response to ME in general practice

Prof Hazel Dockrell https://www.lshtm.ac.uk/aboutus/people/dockrell.hazel Final sentence mentions ME/CFS

A link for Prof David Price https://www.uk-cic.org/researcher/professor-david-price involved in HIV and COVID research

Here’s a link for Prof Ian Bruce https://www.research.manchester.ac.uk/portal/ian.bruce.html director of NIHR Biomedical Research Centre (as well as other responsibilities)

Disabled identity to me is perceived by these people as part of ‘Secondary gain’ - we can get all sorts of ‘preferential treatment’ due to being disabled Disabled parking, motability cars, disability social security benefits, ill health retirement, reasonable adjustments at work all the stuff...

Do you know if you snore? I think I probably do but when I’ve stayed in other peoples houses they say they haven’t heard snoring. I wondered about trying to record on my phone. I wake up every few nights with a dry mouth as if it’s been open. Also I’m overweight. So perhaps they would...

So we need someone to investigate how effective the Epworth scale is in identifying sleep apnoea in people with ME.

Ugh on the one hand on the other hand. (And ugh linking to a book by Shorter) Seems like he’s so reluctant to get off that fence, no doubt he’s got plenty of splinters in uncomfortable locations.

Yes there were definitely some in the workshops. Both groups I was in had a carer.

I support carers used to have caring role for a parent. Is there any evidence to back up the statement about carers above obviously children have parents or carers but in respect of adult people with ME do the vast majority have family who actively fulfil a significant caring role? also there...

https://www.nejm.org/doi/full/10.1056/NEJMoa2206038 interesting development that I’ve only just picked up on these new drugs are apparently effective at suppressing appetite and this latest claims to have resulted in around 20% weight loss.

https://www.nice.org.uk/news/article/nice-recommends-new-drug-for-people-living-with-obesity From 8 February 2022 Thousands of people living with obesity are set to benefit from a drug that has seen reduced body weight of 10% in people taking it.

Would also like to see letter from Forward ME addressed to all the science names who gave glowing quotes

It would be great if someone gets in touch with both Monbiot and Godwin to alert them to the ‘nazi’ chapter and the blogs.

Let’s hope he doesn’t get approached by researchers who want to promote the alleged benefits of eating kale, or getting some fresh air or other such ‘helpful’ suggestions :whistle:

Brilliant @adambeyoncelowe :trophy@

@Joan Crawford @dave30th flagging in case you’ve not seen that Chalder will be speaking about the CODES trial discussion of the trial on this thread...

“Acceptance and commitment therapy for muscle disease”. Which clowns are funding Chalder to gaslight people with muscle disease. Utterly disgusting.

Ah ok so the keratin business doesn’t seem to be being linked to ME as I initially read it