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https://wellcomeopenresearch.org/articles/5-224 Apologies for not copying the text I’m referring to. Under The subheading The perils of pandemic medicine, in the final paragraph of this section the authors state - i paraphrase - that they argue for not being subsumed into other illness...

Good to have confirmation that the guidelines on chronic primary pain don’t apply to PWME. The wording about GET that CoVId patients are not within the scope of the ME guidance is very weasel words fence sitting and will not influence any NHS staff who are determined that GET should be used or...

Sorry if this is a noddy level question @Dx Revision Watch but I’m confused by multiple requests being submitted. Is this simply because of a lack of coordination within the NHS - different organisations submitting requests without checking if others are already addressing the issue. Or is...

Morrison’s putting limits on loo rolls and disinfectant not due to stock shortages but proactively to prevent bulk panic buying https://www.bbc.co.uk/news/uk-england-leeds-54283153

Presumably assumptions have been made that there’s nothing exceptional about it but are there other illnesses where you can get sore throat and swollen glands from participating in activity?

:hug::hug: Sending best wishes for the op @Rosie

I do most of my time online these days slouched down on sofa with my feet up and I’m ok for quite a long time for browsing and simple messaging. Doing more complicated tasks that have more steps need a lot more concentration like filling in a form or editing text definitely has an egg timer on...

It’s hard to separate out the orthostatic intolerance effect from the cognitive exertion. I didn’t realise about orthostatic intolerance when I was still working. sitting at my desk working on the laptop was pretty exhausting, taking part in teleconference meetings was really draining...

This topic is also discussed on this thread in the members area https://www.s4me.info/threads/why-do-people-believe-in-psychosomatic-explanations-for-illness.15327/

If I have to queue up or spend a long time socialising sitting up at a table without any breaks it is going to make me feel worse at the time but also I am definitely getting PEM the following day. I don’t know if I’m interpreting this right but it feels like standing in one spot drains my...

I am ok walking round in the pool and floating. If I start trying to swim I get cramp in my calves very quickly so I can only potter about in shallow water. I can walk for longer/further than I can swim. It was a heated pool but not actually warm. As I’m having work done on my house and...

when a member of my extended family asked me at a Christmas get together a couple of years ago what is ME and I said it’s like having flu a lot of the time it was understood and I Think registered as pretty serious. In my experience flu like symptoms is reasonably well understood by the...

Yes - really important point

I can’t use NSAIDs because of the hypertension medication I take

I count that as the first stage in PEM. I get wired then energy crashes and symptoms ramp up.

Of course we shouldn’t be surprised he is trying to be seen to be saying the right thing and of course that makes all us PWME who say he’s a hypocrite just look like the terrible people picking on him he’s always had to deal with - poor sausage

And apparently hasn’t explored the history of post viral illness

Utter hypocrisy from his ‘eminence’

Ah ok i was scratching my head til I spotted the footnote.

When I’m in a positive frame of mind about it this is what I hope, that trying to use their psychosomatic bs on this new group simply won’t wash. when less positive the concern is there will be a blinkered attitude by all concerned Patients medics health professionals that Covid is somehow...