Search results

Possible way round that a group of people to collaborate and each submit a letter covering one point

@Joan Crawford

At least 10 years in my case

Let’s hope they don’t ask CDC advice on who is an expert on ME/CFS

Yeah and she’s clearly not bothered about lumping everyone together. People with ME in general aren’t worth her eminence engaging with.

I don’t actually think there’s any certainty Javid will remain in post until 2024 - that’s a long time. We need substantial commitments this summer. And to be frank in this economic context even commitments to funding could be overturned until any contract is signed. Sounds like I’m being...

But in this case it’s worse they actually gave him a platform at their meeting

And the British are supposed to be experts at fudging issues. Certainly on GET the CDC appears to be leading the world on fudging.

Yes weasel words. How is that meeting the right context for “engaging with mainstream opinion” they need to set up professional meetings involving professionals who have a clue to enlighten mainstream opinion.

Also insomnia

:banghead:

So how on earth did he get invited? @dave30th CDC removing GET from their website doesn’t mean much if they still allow it to be promoted in their own meetings

It is good that his personal experience has given him an open mind. He has said some positive things. This being a substantial contribution to the recent momentum is a double edged sword as there’s the prospect of a ministerial reshuffle. So let’s hope there’s some tangible results soon.

Endorphin stimulation…. Buzzing…. Sounds somewhat early 20th century

I could access the full article through Sean’s tweet posted up thread. https://www.s4me.info/threads/uk-parliament-myalgic-encephalomyelitis-chronic-fatigue-syndrome-announcements-statement-made-on-12-may-2022.27591/#post-418603

Charles Shepherd has contacted them. Hopefully they will edit. They have generally been one of the better outlets on ME articles in the last couple of years

Presumably want their cake and to eat it yes admit there’s a physical cause but still try pushing that there’s s psychosomatic element if it’s chronic.

These people need to realise we are in the 3rd decade of the 21st Century, their attitudes are so last century.

Yes thanks I could read it all through his link

Apart from the date I think this is a pretty good article ETA and while the date might be a big issue for some in the community for me the ‘exact’ date isn’t something the GPs need to take on board the non psychosomatic message