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Another great and informative section about ME from Swedish media. This time an interview with the famous crime fiction author Karin Alvtegen who is ill with ME. She talks about how the disease has turned her life up side down and describes her meetings with doctors as a Kafka-process. She says...

Someone got the transcript from the YouTube-video. Didn't know that was possible, but here you go

Comprehensive molecular analysis of different classes of molecules in a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome pilot study group, and investigation of RNA-activated Protein Kinase R (PKR) as a diagnostic biomarker - Eiren Chariss Sweetman This study of a range of biologically...

I think in principle no. But am curious to learn how other researchers have solved this problem in previous studies.

Amen! And what planet does he live on when he can state: The field has long been dominated by unilateral biomedical thinking

I wonder if it could be his daughter? EDIT: It is his wife - I got confused as she's presented as a student. BTW, Wyller and his wife had a text yesterday in Psykologiskno (Scandinavian Psychology - open-access journal) about highly sensitive people. Høysensitive kan ha nytte av psykologisk...

You are welcome. I also got A LOT of help from a fellow member of the forum, @Woolie :hug: Yes, when will this disease be cracked open??

Letter to British Journal of Sports Medicine from CPET Experts Last October, the British Journal of Sports Medicine published a short paper that was essentially a summary of Cochrane’s systematic review of graded exercise for chronic fatigue syndrome (as Cochrane calls the illness). In...

Subtitles are there. Will edit the first post to make it more clear :-)

I assume the tricky part is how to make sure it is a properly blinded study when the drug gives side effects as nausea. But this must be a rather common obstacle in research into drug therapies, so there are solutions I hope.

Yes, it would be interesting to know more about the cooperation between dr. Enlander and Mount Sinai and the hospital's research in ME and care for ME-patients. If I remember correctly, Enlander was going to open a ward at Mount Sinai due to a donation from a patient. Also, a few years ago...

Before Christmas, the Journal of the Norwegian Psychological Association had two wonderful texts about ME. One was about a family bravely talking about their loss of trust in the health care system after the child authorities several times had looked into their situation. The other text was from...

English subtitles added. The talk is about autoimmunity and metabolism. Mella also mentions RituxME and CycloME. CycloME has preliminary good data, it appears - and they are planning to do a double blind study on cyclophosphamide. Mella strongly advises against testing treatments outside of...

There are rumours of yet another donation from Pineapple Fund to OMF of 1 mill dollars on top of the 5 millions. Waiting eagerly to see a confirmation on this. ETA: Can't make any sense of this, but perhaps others can?

She's on Twitter as well

A critical view on LP as ME-treatment by Nancy Blake. I am not familiar with either Nancy Blake nor this website, but thought it was an interesting read. - The purpose of this article is to provide an explanation of the theoretical model and practical processes underlying both appropriate and...

This tweet says: We shall have a good and professionally updated health care system in Norway, also for ME-patients. The Cato-center's programme belongs to the past. Professionals and health bureaucrats must get updated on new research, patients experiences must be listened to, and trust...

Another section today with Swedish Minister of Health and Social Affairs, Annika Strandhäll in studio to talk about the social security system's failure towards ME-patients. The minister admitted that the system is not good enough, but it is such a complicated diagnosis, great uncertainty, we...

Finally got to see it. Brilliant! Thanks a lot @Andy for all your work and thanks to dr. Montoya for his time and interesting answers. This was such a nice conversation touching on many different topics. :thumbup: