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  1. Kalliope

    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    Wonder if she'll get a reply?
  2. Kalliope

    #OMFScienceWednesday - collection of the posts

    This week's ScienceWednesday Post from OMF is about the NIH-grant to Ron Davis OMF: Ron Davis (Finally) Gets His Big Grant (article originally from HealthRising)
  3. Kalliope

    Dusenbery & Rehmeyer in Slate: The Science Isn't Settled on Chronic Lyme

    Francis Collins wrote this in NIH Director's Blog from yesterday: Precision Diagnosis for Tick-Borne Diseases? If you get sick, getting a definitive diagnosis in order to get the right treatment for your tick’s particular pathogen(s) can involve multiple tests at a cost of about $200 each...
  4. Kalliope

    Dusenbery & Rehmeyer in Slate: The Science Isn't Settled on Chronic Lyme

    For those interested in the subject, the podcast Science vs recently had an episode on Lyme: Lyme Disease: How Scary Is It? This week, we’re entering the Lyme Wars. We’re asking: what is Lyme disease? How do you get it? How do you know you have it? And if you get infected, are you stuck with it...
  5. Kalliope

    Dusenbery & Rehmeyer in Slate: The Science Isn't Settled on Chronic Lyme

    Slate: The Science Isn't Settles on Chronic Lyme by Maya Dusenbery and Julie Rehmeyer That means that ironically, those who howl that chronic Lyme is “fake” BECAUSE SCIENCE aren’t just being unscientific, they’re also impeding science. On top of that, they are attacking extremely vulnerable...
  6. Kalliope

    News from Scandinavia

    After several great articles in Norway lately in connection to 12th of May and a great ME documentary on national television, it is time for someone trying to set the record straight again. Here is Lightning Process coach Live Landmark with a letter to the editor on how ME patients deserve...
  7. Kalliope

    Cochrane review and the PACE trial

    Yes it does, so why is it presented by prof. Gundersen as brand new? I think Larun et al are working on a new publication, so am expecting one soon, but this can't be it, can it?
  8. Kalliope

    Cochrane review and the PACE trial

    Prof. Gundersen tweeted about a fresh Cochrane review on CFS and CBT/GET with link to this article, but I can't find the publication date. Is this brand new? Larun et al Exercise therapy for chronic fatigue syndrome AUTHORS' CONCLUSIONS: Patients with CFS may generally benefit and feel less...
  9. Kalliope

    News from Scandinavia

    The Danish newspaper Politiken has an article today about protests from different patient organisations (including the Danish ME Association) against the term functional disorder and the new recommendations from the health authorities. Politiken: Patienter med uforklarlige og uhelbredelige...
  10. Kalliope

    News from Scandinavia

    The Swedish news magazine Fokus with a good and well researched article about ME and the situation in Sweden. They've interviewed senior doctor Per Julin at the ME ward at Stora Sköndal, write about how it is difficult to get financial support in Sweden with an ME diagnosis, mentions late Anne...
  11. Kalliope

    News from Scandinavia

    After 2 years of processing, the Norwegian Board of Health Supervision has concluded that off label treatment of ME with Rituximab at the private clinic Kolibri in Sandnes, Norway, is unjustifiable and that the doctor providing the treatment must change his ways. Not sure what the consequences...
  12. Kalliope

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Is today's event typically something that the media will cover? Could we expect some articles about the debate?
  13. Kalliope

    News from Scandinavia

    According to their website they accept patients from abroad. But I couldn't find anything about what treatments they are offering?
  14. Kalliope

    Joseph Stashko: How to (almost) disappear completely

    This was an excellent read!
  15. Kalliope

    News from Scandinavia

    The newspaper Stavanger Aftenblad has interviewed the general secretary of the Norwegian ME Association Olav Osland, assistent general secretary Trude Schei and the leader of the ME Association, Rogaland Country Åse Marie Lønning. Stavanger Aftenblad: ME-foreningen anbefaler bare dokumentert...
  16. Kalliope

    News from Scandinavia

    Yup. Here we go... The official recommendation from Danish health authorities for ME is exercise. It is presented as good news; as the diagnoses on the list thus are considered as conditions you can do something about yourself by starting to exercise. Other (for me) surprising diagnoses on the...
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