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  1. Kalliope

    Trial By Error: A Letter to Archives of Disease in Childhood

    prof. Vincent R. Racaniello Lisa F. Barcellos, MPH, PhD Robin Callender Smith, Phd Lily Chu, MD, MSHS Ronald W. Davis, PhD Jonathan Edwards, MD Valerie Elios Smith Rebecca Goldin, PhD Leonard Jason, PhD Michael Kahn, MD Nancy Klimas, MD Bruce Levin, PhD Steven Lubet Marlon Maus, MD, DrPH, FACS...
  2. Kalliope

    Biopsychosocial seminar in Norway (June 2018)

    Honestly, I was surprised that LP-coach Live Landmark isn't one of the speakers.
  3. Kalliope

    Biopsychosocial seminar in Norway (June 2018)

    Wyller has been premise provider over many years for health personell working with children and young adults with ME. He has a PhD in the disease, has done research over many years into it, and is trusted by many. If I didn't know ME that well, and worked at the Cato-senteret, I might have done...
  4. Kalliope

    Biopsychosocial seminar in Norway (June 2018)

    No, they are mushing it all together. G93.3 is the diagnostic code for ME (Canada-criteria). From the programme (my bold): Do you recognize ICPC diagnostic codes like P75, L84, L18, N95, P02, P82, L83, L29, A04, P78 and P29? Or ICD10 diagnostic codes such as F48.0, Z73.0, F45.4, F45.8, G93.3...
  5. Kalliope

    Swedish TV4 - news sections on ME

    Yet another great session about ME at Swedish TV4! The main theme today is lack of benefits for ME-patients in Sweden. 2 ME-patients interviewed. One from his home as he is homebound. He talks about life with ME and his struggle against a health care system with no knowledge about the disease...
  6. Kalliope

    CFS in Chinese middle-school students, 2018, Shi et al

    Chronic fatigue syndrome in Chinese middle-school students Abstract (my bolding): The objective of the present study was to determine the prevalence of chronic fatigue syndrome (CFS) and its associated factors in middle-school students in Suzhou, China. From September 2010 to January 2011...
  7. Kalliope

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    Here is a lecture from prof. Olav Mella from a conference in Oslo November 2017. Language: Norwegian Subtitles: English Duration: 26 minutes
  8. Kalliope

    Biopsychosocial seminar in Norway (June 2018)

    CATO-senteret, a rehabilitation center for children and adolescents with a biopsychosocial approach to ME, invites health personell to a conference titled "When the body refuse". I noticed both prof. Wyller and Lillebeth Larun (from the Cochrane review group on ME) among the speakers. From...
  9. Kalliope

    Swedish TV4 - news sections on ME

    Wow. Today's new segment on ME was yet again really good. The journalists asked rather tough questions to the leader of the Swedish Medical Association and she agreed completely that the care is not good enough, more research is needed, doctors also must be given time to update themselves on new...
  10. Kalliope

    Petition: Create a virtual school for children too unwell to attend school

    Here is a qualitative study on the communication robot AV1 and young ME-patients. Interesting read. A robot-avatar: Easier access to education and reduction in isolation?
  11. Kalliope

    Swedish TV4 - news sections on ME

    The Swedish Medical Association just recommended Unrest on twitter. Perhaps we can be hopeful for tomorrow's ME-segment on the news?
  12. Kalliope

    Swedish TV4 - news sections on ME

    I have a feeling this could go either way.. I hope the doctor attending is studying hard tonight.
  13. Kalliope

    Swedish TV4 - news sections on ME

    The programme had a HUGE response on yesterday's section on ME. Their Facebook post got over 1 K reactions, 247 shares and 228 comments. A lot compared to other responses on their Facebook page.
  14. Kalliope

    Swedish TV4 - news sections on ME

    The same programme will have a new section on ME tomorrow. Leader of the Swedish Medical Association will join to discuss ME and Unrest.
  15. Kalliope

    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    Done. And I wish a description of PEM could better reflect that the patient often is already having symptoms, and that PEM is an additional flare-up/package of symptoms on top of that. I worry some might misunderstand and think most patients are otherwise feeling rather ok.
  16. Kalliope

    COFFI - The international collaborative on fatigue following infection

    Knut-Arne Wensaas was a new name for me. He's done research on the aftermaths of an outbreak of the parasite Giardia. He is currently working on a post doctorate project called "Irritable bowel syndrome and chronic fatigue following infection with Giardia lamblia. Premorbid factors and long-term...
  17. Kalliope

    Swedish TV4 - news sections on ME

    Today there was a news section about ME on Swedish television. The Netflix-launch of Unrest was given much attention with scenes from the trailer. In studio were prof. Jonas Bergquist (ME-researcher and member of OMFs Scientific Advisory board) and Henrik, a carer over several years for his...
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