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That is a very good point. I remember from a lecture by prof. Sommerfelt (neurologist and paediatrician with long experience on children and adolescents with ME) saying that in a consultation, when he asks the child/teenager how often he/she has been to school lately, the patient often gives a...

Bad writing, for sure! :confused:

I assumed a word was dropped out and that the sentence was supposed to be: it's very hard for me to see how that criticism is not fair when you hear stories of people who've gone rather suddenly from a full life to bedridden status -- something dramatic happened there

New blog post from David Tuller: Trial By Error: My Six-Month Review Given the amount of reporting still left to be done, I will be deciding in the next couple of months whether to conduct another crowdfunding campaign to support another year of work after June 30th. :woot:

Lost all respect for Wyller as a researcher after he recently claimed in the Journal for the Norwegian Medical Association that of course ME-patients should be encouraged to try Lightning Process. :banghead: Wasn't a big fan before either, and I think it is telling that he NEVER attends the...

Available in Norway - AND with subtitles :thumbup:

Thank you @Marco This sounds exactly as what we're talking about. I've thought about this, if elevated brain temperature can be discovered by MRI-testing. I am thrilled to learn this is being looked in to. If I were anywhere close to Alabama, I'd sign up to take part in the research. The video...

I totally get it :laugh:

Huh, that's a good idea. I'll try using an ice package (even though the ice cream binge I thought of earlier does sound more tempting). You might want to see the YouTube video of Jarred Younger that @Marco has posted above. Very interesting.

Interesting also to hear about an opposite experience. Doesn't sound comfortable though, and I hope the symptom will decline again soon.

Maybe someone would like to link this thread to him, or perhaps start a new one based on his question? Edit to add: I can't remember any twitches or spasms from the first years, but it started about 15 years in. Often it is tugs in the left arm, but it can be in both legs at the same time as...

Thank you @Subtropical Island This was interesting. Although I have to admit I'm considering making this into an excuse for an ice cream binge. :woot:

The Wall Street Journal: A Filmmaker's Personal Look at Chronic Fatigue Syndrome Interviewing others, including teenagers and people who have been sick for decades, both inspired her and made her angry about the state of health care and the way doctors often dismiss CFS patients. “That really...

Thank you for your inputs and thoughts @Invisible Woman @Marco @Indigophoton Never actually discussed this with anyone before, so very interesting to hear from others. I am looking forward to learn more about Jarred Younger's approach and if he can reveal anything. That was news to me, but...

There is a symptom which I think has arrived only recently, which means during the last few years. I might have had it before, then the symptom declined, and I forgot about it. I don't even know what to call it. Brain fever? Warm brain? If I concentrate too much, it actually feels as if the...

Thanks for taking a closer look, @Esther12 I must admit to having just skimmed the article myself :whistle:

Article today in the Guardian: Workplaces should cater for menopause as they do for pregnancy Guess how? - CBT! Says who? - Myra Hunter, emeritus professor of clinical health psychology at King's College London The call comes as Hunter and colleagues publish the results of one of the first...

Update from OMF on ME/CFS Collaborative Research Center in this week's #OMFScienceWednesday. The Stanford research team got back to work this week and this is among their plans: A major priority is publishing the results the team has generated so far, including the potential diagnostic...

OMG. This would have been both quite topical and updated had it been sent today. All the years that have been lost on nonsense..

Thank you. That was very interesting; to see what impression "outsiders" are left with after having seen the documentary. Seems Unrest did its job pretty well for those in the discussion.