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Yes, highly recommended as it was full of gems. Great people joining in and many moving comments.

The Norwegian "patient"organisation Recovery Norge (which promotes Lightning Process and was just invited to give lecture for the national center of expertise for CFS/ME) has nailed this. Several of those who have declared themselves recovered by their own efforts via Recovery Norge are still so...

I tried high dosage injections with Hydroxocobalamin some years back to no effect, but am considering having another go. Does anyone here combine B12 with folic acid as in this study? Worth a try? Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromyalgia Edit to add...

ah, so the victim here is him :rolleyes:

Ricky Gervais was asked to comment on his joke about ME which is shown in Unrest and he gave an answer

David Tuller up in 15 minutes

Rapper Trip Lee talked about his battle with ME and that his song "Sweet Victory" is about the disease

This is the twitter bio to Mark Suzman: Chief Strategy Officer & President Global Policy & Advocacy, Bill & Melinda Gates Foundation. Tweets my own, interested in global health and development

Jessica Taylor was just on. Here are some other names to expect. Cool idea. Link: #UnrestPBS

Oohh.. many interesting names for the twitter chat marathon today. If you want to follow it, click here.

Wow. The tide IS turning.

I take 30 pills. It’s a lot of pills, but remember, I thought I’d be in a bedroom for the rest of my life. Over the course of a long time, I accumulated a list of these 30 drugs that worked and this one injection that works, and they are the reasons I’m stronger today than when I was 19 years...

Informative article in Deadline about Unrest and ME. Jen Brea tells about being disabled and a moviemaker and her film being shortlisted for an Oscar nomination. Deadline: Jennifer Brea on How She Directed "Unrest" From Bed: Oscar Shortlisted Doc On Life With Chronic Fatigue Syndrome Among...

Another blog post from David Tuller Trial By Error: COPE to BMJ Open: More Details, Please! - To sum up: The activities in the school absence study do not qualify as “service evaluation” by any standard. As this response from the COPE forum makes clear, the investigators should not have...

Yes, surely there must be better ways to assess a situation, like simply asking "How can we help?".

This is a huge problem in Norway, sadly. The Norwegian Psychological Association recently wrote a very good article about a family with several members with ME and how traumatic it was for them to get the child welfare authorities involved. ME-syke kjemper for å bli trodd google translation...

I think it is odd of the district medical officer to dismiss this problem. Surely people must understand how traumatic and frightening such notifications can be for families, particularly when dealing with a system without proper experience and knowledge about ME.

The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities. One of four parents with children with ME say they have been threatened of child welfare authorities from school, health personell or others. A father with two children under assessment for ME tells...

New blog post today by David Tuller. - This post is about a serious issue–ethical approval for research studies involving children. It is also about how powerful institutions, like leading medical journals, respond to concerns. But the story is really too long and complicated. I recommend it...

Great article today from NPR: "Unrest" Director Turns Camera on Herself to document Chronic Fatigue Syndrome Tells Brea's story, about ME in USA, about funding for research, facts about ME, inputs from dr. Nancy Lee, the IOM-report.. Links to Brea's TED Talk, article about the IOM-report and...