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  1. Kalliope

    Trial By Error: The Crawley Chronicles, Continued

    New blog post by David Tuller Trial by Error: The Crawley Chronicles, Continued About whether or not Tuller ever was sent a cease-and-desist-letter Also mentions professor Holgate and that there will be a new blog post next week on the SMILE trial.
  2. Kalliope

    Facebookpage: True Stories About Lightning Process (Critical)

    New story out from a woman who did LP in York in 2008.
  3. Kalliope

    News from Scandinavia

    A senior doctor writes in favour of better public medical insurance for ME-patients in Journal of the Swedish medical Association. Kroniskt trötthetssyndrom - ett omöjligt läkaruppdrag? Google translation: Chronic Fatigue Syndrome - An Impossible Medical Mission? Rejection of medical...
  4. Kalliope

    News from Scandinavia

    A doctor critically debates study on ME and pyruvate dehydrogenase in the Journal of the Norwegian Medical Association Svak kobling mellom kronisk utmattelsessyndrom og pyruvat dehydrogenasemangel google translate: Weak link between chronic fatigue syndrome and pyruvate dehydrogenase deficiency
  5. Kalliope

    News from Scandinavia

    Sveriges Television is the Swedish public service television company. They have a news report today about ME-patient Malin who is refused welfare. Malin förlorar sjukpenningen - trots kroniskt trötthetssyndrom Google translation: Malin loses sickness benefit - despite chronic fatigue syndrome...
  6. Kalliope

    Phase III Rituximab Trial - News

    Yes, it isn't perfect, but considering it is from Denmark, this isn't bad.
  7. Kalliope

    Phase III Rituximab Trial - News

    One of the biggest newspapers in Denmark, Politiken, writes about RituxME and the negative results Håb brister for kronisk trætte patienter: Kræftmedicin hjælper ikke Google translation: Hope fails for chronically tired patients: Cancer medicine does not help The article also contains a bit on...
  8. Kalliope

    New York Times: New Recognition for Chronic Fatigue

    Great article today in NYT on ME. The content is updated and informative (so I've decided to ignore that the headline is Chronic Fatigue instead of Chronic Fatigue Syndrome) :) New Recognition for Chronic Fatigue by Jane E. Brody - Having recently endured more than a month of post-concussion...
  9. Kalliope

    Phase III Rituximab Trial - News

    Apparently this was NOT said after all. No numbers were given, according to another attendee. Guess we'll have to wait for the publication.
  10. Kalliope

    Phase III Rituximab Trial - News

    Yes, same here. I experience it as a flare-up of symptoms. Also, for me, a crash is an extreme version of PEM, but I see others use crash and PEM as the same thing. It is a bit confusing.. --- By the way, thought you guys should see this tweet from Wesseley about RituxME as a response to...
  11. Kalliope

    What treatment trials for ME/CFS are currently ongoing?

    The trial on fecal transplantation will start up in March next year, and they are still open for inclusion. The trial is called The Comeback Study and it has its own Facebookpage. Currently everything is in Norwegian, but I am sure they can write updates in English as well if requested.
  12. Kalliope

    Condition among athletes with similarities to ME?

    Seems there is a distinguish between "overtraining" and "overtraining syndrome". The doctor in the article was behind a guideline for overtraining syndrome which includes medical examination, blood tests, urine tests, ECG, lactate profile with anaerobic testing (two tests with 3-4 days...
  13. Kalliope

    Condition among athletes with similarities to ME?

    Article today from the Norwegian broadcasting corporation about athletes who suddenly come down with something the doctors believe has similarities with ME - although the prognosis are good for the athletes. Anyone else heard of this? Any thoughts? NRK: Hvorfor slutter idrettekroppene å...
  14. Kalliope

    Phase III Rituximab Trial - News

    Apparently there were noe statistically significant difference between those who received Rituximab and the placebo-group. (But I've only read bits and pieces here and there and no proper summarisations (yet) of Mella's lecture)
  15. Kalliope

    News from Scandinavia

    Seminar over 2 days about ME in February 2018, Norway. Programme looks very good! If you know of any Norwegian doctors who might be interested, please send them an invitation. Klinisk emnekurs om CFS/ME for leger
  16. Kalliope

    Research Conference in Oslo 20-21 nov with Davis, Hornig & Mella

    Brief account of the Research conference and the celebration of the 30 year anniversary for the Norwegian ME Association Forskningskonferanse og fagdag, ME-foreningen feirer 30 år Google translation Research Conference, Seminar, The ME Association celebrates 30 years - Initially, Ron Davis...
  17. Kalliope

    Phase III Rituximab Trial - News

    Yes. But these numbers are for now just hearsay, and perhaps the person who attended the lecture misunderstood or remember wrong. We'll have to wait for more details.
  18. Kalliope

    Phase III Rituximab Trial - News

    I read in a Facebookthread from someone who attended Mella's lecture yesterday that he said about 30% had responded, not 50% or more, as was the limit for a positive study.
  19. Kalliope

    News from Scandinavia

    Lecture on ME from ergonomist Ewa Wadhagen-Wedlund from the ME ward at Stora Sköndal outside Stockholm. In Swedish.
  20. Kalliope

    Phase III Rituximab Trial - News

    Author and journalist Jørgen Jelstad with a blog post today about the news. He has written a book about ME and held a pre-conference dinner speech for Invest in ME a few years ago. ME-studien på rituximab er negativ Google translation: The ME Study on Rituximab is negative In such moments it...
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