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My 2011 NY Times Exchange With the PACE PIs When the PACE trial was published in early 2011, my New York Times editor sent it to me, along with the press release. As a non-staff contributor to the Times, I had started covering the debate over the mouse retrovirus hypothesis and science, but I’d...

NICE's Consideration of the Lightning Process Here’s an e-mail I sent last Thursday to two key members of the NICE guidance executive, Sir Andrew Dillon and Professor Mark Baker. I also cc’d several stakeholders as well as Fiona Godlee, the editor-in-chief of The BMJ and editorial director of...

I completely agree. I am not a bit fan of our current government in general, but our prime minister REALLY do care about ME-patients, she actually knows a bit about the disease and is very eager on research in general. Now as we are looking for other incomes than petroleum and have lots of...

Over 300 000 saw the documentary about ME on television on Wednesday. :jawdrop:

The Times has an article today. One needs to register to read the whole article. ME sufferer who was dismissed as hysterical vindicated in death

Sciencealert has picked it up: Here's What Science Knows So Far on The Causes of Chronic Fatigue Syndrome ETA: They have over 9 million followers on Facebook ..and 68 K followers on Twitter

Yes, you are right, @andypants That was an excellent article. I completely forgot to post it here! ME-patient Ragnhild recently turned 30 years old. She wished for donations to OMF as birthday presents and raised over 35 000 NOK (4 300 USD, 3200 GBP). She explains life with ME very well. Linda...

Absolutely, and I wonder if part of the explanation is that the documentary maker spent two years making the film and that some of the journalists at TV2 have some knowledge about ME from before. That is why it is so crucial to get more science journalists and other journalists to attend...

ME has been the first topic on Norwegian TV2's main news broadcast two days in a row. Tonight we met a family with a daughter with severe ME. They have been reported twice to the child welfare authorities. The contact person in the Norwegian ME Association for carers was interviewed as well as...

Another news section about ME from Norwegian TV2. 2 mothers to ME-sick children in the studio, as well as professor Ola Didrik Sagustad and the creator of yesterday's documentary, Pål Schaatun. Prof. Saugstad says that the knowledge about ME varies a lot, but is improving. However, many...

Agree! I noticed however that Lightning Process coach Live Landmark is complaining on Facebook that she and several others with a biopsychosocial approach had been in contact over a long period with the journalist behind the documentary. Several of them were filmed/interviewed, but were cut...

The documentary about ME and RituxME that was sent tonight on Norwegian television was amazing. No big news revealed, but presented the disease very respectfully, had a lot of information and gave good insight to the researchers and their work at the cancer ward at Haukeland university...

Article about ME in connection to the documentary tonight about RituxME and ME on Norwegian television. TV2: Emilie (18) har ligget i senge sammenhengende i ti måneder google translation: Emilie (18) has been lying in bed for ten months Includes statements from prof. Wyller who actually...

This #OMFScienceWednesday post definitely deserves its own thread :emoji_confetti_ball::emoji_clap::party: OMF creates as new Harvard ME/CFS Collaborative Research Center and expands Stanford Data Center We are proud to announce that OMF has funded $1.8 million for the establishment of a new...

Trailer for tomorrow's ME-documentary on Norwegian television. The documentary has followed some ME patients and the RituxME trial for two years. It will be aired on TV2 tomorrow at 21.40. Here is the documentary's Facebook page.

Thanks once again, @Andy for helping out. I keep forgetting that there are alternatives to google translations..

Article in the Swedish newspaper Aftonbladet about 13 year old Irma who has ME. It explains very well her isolation and the family's frustrating meeting with the health care system who lacks knowledge about the disease. Aftonbladet: Irma, 15, lever med obotliga sjukdomen: "Det är så jobbigt"...