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  1. Kalliope

    The Canary: An ex-professional ballet dancer is using his art for the ‘millions missing’

    - I’ll be damned to see another few generations of promising dancers, artists, athletes etc. being wasted merely because of politics. It needs to stop. My hope is that patients and allies will have the strength to keep telling the truth about this disease until we need to do no more. We are...
  2. Kalliope

    News from Scandinavia

    Excellent opinion piece from Sweden Metro: Agnes Arpi: Okunskapen om ME-sjuka är tragisk google translation: The ignorance about ME patients is tragic The fact that the body and the brain is connected is true, but the statement "it's in the head" is terribly misused. So many patients, meeting...
  3. Kalliope

    News from Scandinavia

    They already did :laugh:
  4. Kalliope

    Denmark - Manifest to health authorities from 85 ME-patients

    Yes, I think it is safe to assume they might have been somewhat ... eclectic... in whom they've reached out to. :whistle:
  5. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Found it and it was a breeze! Just click here and find the location of your event on the list, click on the link and upload. They want pictures from physical events, not virtual. SmugMug City Upload Links (#MillionsMissing 2018)
  6. Kalliope

    Denmark - Manifest to health authorities from 85 ME-patients

    The local Danish newspaper Ukeavisen Esbjerg has written several articles about a severe ME-patient who is bed bound and nursed by her parents, and whom the municipality sees fit to work and thus not in need of welfare money. Today the newspaper print a manifest made by 85 ME-patients who tell...
  7. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    That was easier said than done.. I've uploaded pictures but don't know how to add them in the correct album. Is there a step-by-step-procedure somewhere? Edit to add - or an e-mail address I can send photos to so MEAction can upload themselves?
  8. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Local TV station in Stavanger, Norway with a short section about Saturday's demonstration. TV Vest: Norges største samling på ME-dagen (Norway's biggest event on the ME-day)
  9. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    (Norway) Rogalands Avis: Stor markering i Stavanger på ME-dagen Big event in Stavanger on the ME-day Article is behind paywall but had several great pictures of shoes and speakers, good information about ME and the lack of care. One of the speakers were a mother of a severe ME-patient. The...
  10. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Local newspaper in Stavanger, Norway about today's MillionsMissing event. Very nice article with lots of pictures from a large shoe installation, interviews with several people including professor Saugstad who says: May 12th is the ME Awareness day. I have participated in this for several years...
  11. Kalliope

    News from Scandinavia

    The Norwegian ME Association - Oslo and Akershus county - has made a video with interviews of Norwegian ME researchers for 12th May. I hope someone is working on subtitles in English. The film contains an interview with professor Ola Saugstad about the IOM report, increased research in USA, and...
  12. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    From Stavanger, Norway A great day and a great turnout! Several journalists came. Hopefully there will be some good coverage. For now the Norwegian public broadcaster has shared a photo and short description of the demonstration. NRK: Sko for myalgisk encefalomyelitt google translation: Shoes...
  13. Kalliope

    Norway: ME Forening (ME Association)

    Merged thread Two allocations from The Norwegian ME Association to research The Norwegian ME Association celebrates 12th of May by allocating funds for two research projects into ME. The research group for ME/CFS at the cancer ward at Haukeland university hospital (prof. Olav Mella and MD...
  14. Kalliope

    Teenager with ME’s life has been transformed by a robot that helps her learn

    Those who have developed the robot, AV1, just tweeted this :)
  15. Kalliope

    News from Scandinavia

    Letter-to-the-editor by psychologist and ME-patient to the newspaper Dagsavisen Problemet med hvordan vi forklarer ME google translation: The problem of how we explain ME Focus on psychosocial factors has not reduced prevalence. ME is the main reason for sick leave at school. During the last...
  16. Kalliope

    News from Scandinavia

    Letter-to-the-editor by chairman and general secretary of the Norwegian ME Association to the newspaper Dagsavisen. Håp for ME? google translation: Hope for ME?
  17. Kalliope

    News from Scandinavia

    Sissel Sunde is behind the largest MillionsMissing event in Norway tomorrow. It all started with a guest blog post at one of the biggest bloggers in the country, where Sissel told her story together with information about ME, research and the MillionsMissing movement. The blog post was shared...
  18. Kalliope

    New Album - Songs of Silence by Anette Gilje

    This is a wonderful, beautiful album with short songs accommodated for people with low listening capacity. The songs are made by Anette Gilje, a sufferer of ME for many years. The texts reflect several aspects of living with this disease. Anette is a great advocate for ME in Norway. She was...
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