- I’ll be damned to see another few generations of promising dancers, artists, athletes etc. being wasted merely because of politics. It needs to stop. My hope is that patients and allies will have the strength to keep telling the truth about this disease until we need to do no more. We are...
Excellent opinion piece from Sweden
Metro: Agnes Arpi: Okunskapen om ME-sjuka är tragisk
google translation: The ignorance about ME patients is tragic
The fact that the body and the brain is connected is true, but the statement "it's in the head" is terribly misused. So many patients, meeting...
Found it and it was a breeze!
Just click here and find the location of your event on the list, click on the link and upload. They want pictures from physical events, not virtual.
SmugMug City Upload Links (#MillionsMissing 2018)
The local Danish newspaper Ukeavisen Esbjerg has written several articles about a severe ME-patient who is bed bound and nursed by her parents, and whom the municipality sees fit to work and thus not in need of welfare money.
Today the newspaper print a manifest made by 85 ME-patients who tell...
That was easier said than done.. I've uploaded pictures but don't know how to add them in the correct album. Is there a step-by-step-procedure somewhere?
Edit to add - or an e-mail address I can send photos to so MEAction can upload themselves?
Local TV station in Stavanger, Norway with a short section about Saturday's demonstration.
TV Vest: Norges største samling på ME-dagen (Norway's biggest event on the ME-day)
(Norway) Rogalands Avis: Stor markering i Stavanger på ME-dagen Big event in Stavanger on the ME-day
Article is behind paywall but had several great pictures of shoes and speakers, good information about ME and the lack of care.
One of the speakers were a mother of a severe ME-patient. The...
Local newspaper in Stavanger, Norway about today's MillionsMissing event. Very nice article with lots of pictures from a large shoe installation, interviews with several people including professor Saugstad who says:
May 12th is the ME Awareness day. I have participated in this for several years...
The Norwegian ME Association - Oslo and Akershus county - has made a video with interviews of Norwegian ME researchers for 12th May. I hope someone is working on subtitles in English.
The film contains an interview with professor Ola Saugstad about the IOM report, increased research in USA, and...
From Stavanger, Norway
A great day and a great turnout!
Several journalists came. Hopefully there will be some good coverage.
For now the Norwegian public broadcaster has shared a photo and short description of the demonstration.
NRK: Sko for myalgisk encefalomyelitt
google translation: Shoes...
Merged thread
Two allocations from The Norwegian ME Association to research
The Norwegian ME Association celebrates 12th of May by allocating funds for two research projects into ME.
The research group for ME/CFS at the cancer ward at Haukeland university hospital (prof. Olav Mella and MD...
Letter-to-the-editor by psychologist and ME-patient to the newspaper Dagsavisen
Problemet med hvordan vi forklarer ME
google translation: The problem of how we explain ME
Focus on psychosocial factors has not reduced prevalence. ME is the main reason for sick leave at school. During the last...
Letter-to-the-editor by chairman and general secretary of the Norwegian ME Association to the newspaper Dagsavisen.
Håp for ME?
google translation: Hope for ME?
Sissel Sunde is behind the largest MillionsMissing event in Norway tomorrow.
It all started with a guest blog post at one of the biggest bloggers in the country, where Sissel told her story together with information about ME, research and the MillionsMissing movement. The blog post was shared...
This is a wonderful, beautiful album with short songs accommodated for people with low listening capacity.
The songs are made by Anette Gilje, a sufferer of ME for many years. The texts reflect several aspects of living with this disease.
Anette is a great advocate for ME in Norway. She was...
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