Search results

  1. Kalliope

    News from Scandinavia

    Thank you for bringing context and nuances to the editorial, @mango :-)
  2. Kalliope

    #OMFScienceWednesday - collection of the posts

    Same post on OMFs website: OMF funded Severely ill Big Data Study
  3. Kalliope

    The Body - Using Lessons from HIV Activism, People With CFS Fight for the #MillionsMissing

    Here are their posts about the article on Facebook and Twitter, for those who want to like, share, and/or comment.
  4. Kalliope

    News from Scandinavia

    It does for a second, and then an error message appears (at least for me).
  5. Kalliope

    News from Scandinavia

    Thank you @Helen for the translation I am not sure how to make a google translation link from the editorial, but usually someone on the forum can help when I'm stuck. I'm under the impression that with a google translation link internet's wonderful ways somehow ensures that also the original...
  6. Kalliope

    News from Scandinavia

    Excellent editorial from the Swedish Aftonbladet, whom lately has had several articles on ME (see recent posts on this thread by @mango ) It is a strong support to ME-patients and to proper welfare for this patient group. For some reason I was not able to google translate this. Perhaps others...
  7. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    Yup, that's a precise translation. I have a feeling this might be from input by prof. Wyller or another Lightning Process-supporter.
  8. Kalliope

    The Body - Using Lessons from HIV Activism, People With CFS Fight for the #MillionsMissing

    The Body - The Complete HIV/AIDS Resource Journalist Olivia G. Ford Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight for the #MillionsMissing Simpson and Wilder both use the skills they've gleaned over decades as HIV activists to understand who has the power to make...
  9. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    The editor sums up the debate. I had hoped she'd learned a bit more about ME recently, but no.. For outsiders, the biopsychosocio-approach seems a reasonable compromise between those who "believe" (her word) ME is physiological and those who believe ME is psychological. But it is not enough...
  10. Kalliope

    News from Scandinavia

    One of the biggest podcasts in Norway, Tusvik & Tønne, is a comedy podcast. They're known to be quite politically incorrect, and occasionally joke about ME. But out of nowhere today they told their listeners that 12th of May is the international awareness day for ME, that this is a disease they...
  11. Kalliope

    Finland: Draft report on planned guidelines based on Fink's functional disorders

    I assume Per Fink is part of the international network Norwegian prof. Wyller talks about? Wyller and his research group at Akershus University Hospital have been researching ME for many years. They belong to an international environment that investigates the development of ME after an...
  12. Kalliope

    News from Scandinavia

    Excellent letter-to-the-editor by severe ME-patient in a local newspaper in Norway. Agnete Skrede i Fjordingen: Den internasjonale ME-dagen 12. mai google translation: The international ME-day 12th of May
  13. Kalliope

    News from Scandinavia

    There will be a documentary about ME on Norwegian television (TV2) May 23. 21.40. It is called De Bortgjemte (The Hidden Ones). The documentary has followed the research to Fluge and Mella and some of their patients for two years. The documentary has an Instagram profile (currently with only...
  14. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    New article today at Forskning.no about ME. Professor Kristian Sommerfelt and the national center of expertise on CFS/ME are interviewed again. This time prof. Wyller (biopsychosocio-researcher - has an ongoing trial on music therapy as treatment for ME and wants to do a trial on LP and ME) is...
  15. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    Forskning.no is a website about research for a general audience. ME has been debated several times lately, including research, the PACE-trial, psyche vs soma etc. A while ago, a psychologist with ME wrote an excellent debate article about ME at forskning.no. But she used a pseudonym without...
  16. Kalliope

    David Tuller - Trial By Error: A Q-and-A with Leonard Jason, on Case Definition

    A Q-and-A with Leonard Jason, on Case Definition A Brief Update: Berkeley’s crowdfunding period closed on April 30th–Monday night. I ended the campaign with $87,580. After Berkeley’s 7.5% in fees, the funds will cover my salary/benefit from July 1, 2018 to June 30, 2019, and some travel costs...
  17. Kalliope

    Nederlands Dans Theater with video dedicated ME-patients everywhere

    This was stunning!! Nederlands Dans Theater (NDT) on Facebook: Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...
  18. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    ah yes, good point @Solstice and @Alvin ! ETA: Even better!
  19. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    The crowdfunding has ended at 82,580$ 110% of the goal on 75,000$ 948 donors :balloons::balloons::party::balloons::balloons:
Back
Top Bottom