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  1. Utsikt

    The Concept of ME/CFS, 2024, Edwards

    Throughout the history of humans, most people have been wrong about most things. And most people don’t understand the almost insurmountable requirements that have to be overcome in order to prove that something is «known» og «true». Even the people that understand, are prone to logical fallacies...
  2. Utsikt

    Pacing up - why it's as harmful and unevidenced as GET

    It’s difficult to change your mind without strong incentives (like PEM). And some just want to be of help, so they end up focusing too much on trying to force or create an improvement.
  3. Utsikt

    Review Machine learning and multi-omics in precision medicine for ME/CFS, 2025, Huang....Armstrong

    I was not aware of that context, thank you for letting me know. Seems like I jumped to conclusions, although prior work isn’t a guarantee against future mistakes or inaccuracies so we need scrutiny for everyone (which is what you alway do!) Interesting idea! Although my typing speed and...
  4. Utsikt

    Where can patients argue with clinicians and scientists about bad science in ME/CFS?

    It’s probably impossible. And that’s a good argument against contacting researchers. If they want to hear from us, they know where to find us.
  5. Utsikt

    Review Machine learning and multi-omics in precision medicine for ME/CFS, 2025, Huang....Armstrong

    «We need to use all of the available tools and work together to solve this». Why is this relevant for ME/CFS? Logical fallacy? «We haven’t found anything yet, so we need a different approach.» More like we haven’t had the funding to dig deep enough with large sample sizes.. «Shit in, shit...
  6. Utsikt

    Where can patients argue with clinicians and scientists about bad science in ME/CFS?

    I’m new here and I love this place. Why do people hate it and stay away? I might be naive and idealistic, but I (used to) work in a firm with a partner structure - they are essentially a breeding ground for this kind of culture. During my first meeting with the entire local division, I...
  7. Utsikt

    Pacing up - why it's as harmful and unevidenced as GET

    Is it fair to say that this is a good rule of thumb?: You can’t force an improvement, you have to wait for it while avoiding deterioration. This goes for any intervention. So far, I’ve yet to see any evidence of anything that can guarantee an improvement for any given patient, including...
  8. Utsikt

    Pacing up - why it's as harmful and unevidenced as GET

    I like his theory because it focuses on something they found to be wrong, and then they try to work around it. It might not be what’s wrong with you, but I’ve heard personal anecdotes about significabt improvements from this method. Although I’ve never heard about major improvements for anyone...
  9. Utsikt

    Pacing up - why it's as harmful and unevidenced as GET

    This tracks with my understanding of PEM after 3 years of LC and now ME. The rule is simple: don’t cause PEM, wait for a stable improvement (weeks), and use at most half of that improvement.
  10. Utsikt

    Should we change our name: 'ME/CFS Skeptic'?

    Some suggestions: ME/CFS Disassembled (MCD) ME/CFS Understood (MCU) ME/CFS Comprehension (MCC) Although «SKEPTICISM implies unwillingness to believe without conclusive evidence». Which is what you do.
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