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I was going to applaud the use of blinding and placebo.. @Yann04 how is the trial funded? It might not have come out of earmarked ME/CFS-money, so the alternative cost might be zero. I still agree that it would have been better do to basic research first.

Science exists on a gradient like everything else. There’s excellent science and terrible science. So yes, the problem occurs when people believe that science has an inherent value or that it represents an inherent truth. There’s a quote that I often think of: If you manipulate the data, the...

We’re getting to the core of modern power structures here. People just want a report or a piece of paper that says what they want it to say. The truth or facts doesn’t matter - or they believe that it’s all relative and it all comes down to opinions anyways. Most people go along with it...

Who’s going to make it compulsory? That’s the key issue here. The people with the power to change things either don’t know about the issue, don’t care about it or don’t believe that it’s an issue at all.

This is exceedingly common in business as well. If an EU directive makes your life difficult, it’s easier to just not think about it or argue that it’s irrelevant. And if you didn’t have a good mentor, you might not even be aware of the directive or you don’t know how to pay attention to the...

@Valerie Eliot Smith tried to get the ME/CFS community to push in the same direction. Nobody wanted to listen. I’m not saying we should give up. But I don’t see another clear path forward. Btw, this might be a topic for another thread...

You’re right - I missed that.

They do it for banks in the EU. If you mess up sufficiently, the directors can end up in jail.

Good idea @Nightsong Let others do the heavy lifting. We’ve got enough on our plates as it is.

Most people are mostly concerned about their immediate surroundings - including us. There are plenty of non-ME/CFS topics to be outraged about as well - most people aren’t.

How would that affect the measurements? If you take the weight or volume of the piece you check and divide it by the total mass or volume of the brain, the proportions are constant regardless of expansion. If they store the pieces over a long period of time, I assume they measure and log the...

It might be that there’s an upper limit for how much MNP that can accumulate in the brain, and that most people nowadays are exposed to enough MNP to comfortably reach the upper limit?

Are there known connections going the other way? It’s good to learn from other fields, but even better if those fields become interested in ME/CFS because it might benefit their work.

It might have been, but Crawley retired (possibly instead of trying to implement a change - pure speculation).

Google gave me this: https://www.bma.org.uk/bma-media-centre/14-000-doctors-write-to-party-leaders-to-express-grave-concern-over-use-of-physician-associates

Her: You’re hurting me! Them: No, I’m not. Us: You’re hurting her! Them: No, you’re delusional. How confident do you have to be in your own opinion to brush off claims of damage at your hands? This is the kind of behaviour that makes me wish for a lower threshold for personal legal liability...

@Murph are you able to change the font to the standard one? I have a very hard time reading the skinny letters Thanks in advance! Mod note: done

I have never used any tools like this before, but some AI tool might be able to help you. Maybe worth a shot...

Knowledge development post-COVID-19 by NordForsk The purpose of this policy paper is to summarise the key scientific findings on PCC and the relevant research needs that have been identified in the project “Knowledge development post-COVID” initiated by the Nordic Council of Ministers in...

I believe he meant if people with high Y improved after treatment, not that high Y leads to improvement itself.