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  1. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Their response frankly emphasizes that they don't actually consider this part of their remit. It's too important to overlook, this is supposed to be their primary mission. They seem to be about protecting Cochrane, rather than holding it accountable. Just as, clearly, the professional medical...
  2. rvallee

    Long Covid in the media and social media 2023

    We have circled back, and it circled us back to hell. It's very hard to put in context the magnitude of this failure, given how it was the lowest of hanging fruits to have ever hung from anything. It's such raw incompetence and complete failure of duty and ethics. I don't think that our...
  3. rvallee

    Brain Drain: Common Infections Tied to Cognitive Decline

    Honestly, there are very strong parallels to medicine's OK-aying mass infections, dismissing all concerns about harm, and leaded gasoline spewing a neurotoxin in the atmosphere for decades. Absurd that this is still essentially the end tail of medicine's refusal to accept the germ theory of...
  4. rvallee

    RESToRE exercise trial for long COVID, Columbia University Irving Medical Center, 2023

    The fact that there are already dozens of identical trials, in addition to 3 years of real life experience, makes the NIH exercise experiment so shady and unethical. As if it's needed, when in fact it's the most common thing already tried and failed.
  5. rvallee

    Long Covid is being erased —again—Ed Yong

    Hard to dispute this when the first study published did exactly that, despite not being credible that the researchers did not understand it. Unless they simply did not bother learning about it beforehand, obviously they knew that standard tests showed nothing and that it would be used to...
  6. rvallee

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    There is simply no other context where a billion+ dollar is wasted with nothing to show for it where heads don't roll and entire departments aren't reformed. For sure it happens a lot. Meta has wasted billions on their VR thing. But they're not doing the same thing in loop, they adapt and...
  7. rvallee

    Talking therapies linked with reduced risk of cardiovascular disease

    The King looked at his domain, content that the Sun he made rise this morning is giving light and food to his subjects, and ultimately to him and his court. He could not stop thinking of what tragedy would befall his kingdom if one day he failed to rise up, and bring the Sun with him. Oh, King...
  8. rvallee

    Exercise Intolerance Associated with Impaired Oxygen Extraction in Patients with Long COVID 2023 Norweg et al

    Here we find the vast gulf between intelligence and wisdom, which clearly don't always come in pairs. Intelligence is only useful when it's wisely applied. The problem? Clear exertion intolerance. It takes intelligence to figure this out. The solution? Well, the problem, of course. Now this is...
  9. rvallee

    The biopsychosocial model: Its use and abuse 2023 Roberts

    Random thought, but a good name for this could be Lorem ipsum medicine, or Lorem ipsum healthcare. Lorem ipsum is some text that for some reason the typographic industry has used for a long time as a placeholder text. It's still commonly used in design, wherever text should go, Lorem ipsum is...
  10. rvallee

    Sweden - Government announcements about Long Covid, 2023

    Honestly, every time I keep seeing rehabilitation feels just as ominous as the word holistic, it pretty much guarantees incompetence*. It's such a mindless obsession, as if all you have to do is just want to treat people, and they will be magically treated. Just like that, like magic! It helps...
  11. rvallee

    Long Covid is being erased —again—Ed Yong

    I think this should work: https://archive.is/aJnFW.
  12. rvallee

    Long Covid is being erased —again—Ed Yong

    Another very good article by Yong. But although the attempts are more subtle, the outcomes are the exact same. There is no actual difference in outcome between those who come out and simply assert "not a thing", and those who use dog whistle language to mean the same thing. They really do mean...
  13. rvallee

    Effects of sleep disturbance on dyspnoea and impaired lung function following hospital admission due to COVID-19 in the UK: 2023 authors incl. Chalder

    What a weird framing. Obviously sick people being denied proper care will continue seeking health care. This is literally what's expected. But it has nothing to do with psychosomatic, it's the denial of care, whatever form or nature it takes. And of course this basically ignores reality. They...
  14. rvallee

    Long Covid in the media and social media 2023

    Pretty good report from PBS. Newshour always does well, some of the best in the profession. Although I wish that journalists started reporting more on the broader issue, rather than on individuals. How this was warned about, how little support there actually is, how much disbelief, how little...
  15. rvallee

    Neutrophils infiltrate sensory ganglia and mediate chronic widespread pain in fibromyalgia, 2023, Sara Cavaria et al

    Seems... significant. As they mentioned about the peripheral findings, research is aligning in some direction. There was always a giant gap at the center of the central sensitization thing. Well, two if you count the central part, which was merely asserted. But, really: sensitized by what? How...
  16. rvallee

    Abnormal brain diffusivity in participants with persistent neuropsychiatric symptoms after COVID-19, 2023, Liang et al.

    Then you tested it wrong. Cognitive impairment is one of the most reported issues, and one of the most disabling. This is not credible. And clearly, badly want to attribute this to "stress", which is always poorly assessed and without any depth. I don't even understand what chronic stress as a...
  17. rvallee

    Preprint medRxiv: Risk of new-onset Long Covid following reinfection with SARS-CoV-2: community-based cohort study, 2023 - Bosworth et al

    Infections don't stop at 2, though. It's really odd that after plenty of people have been infected more than twice, that they just stop there. And not all infections are equal.
  18. rvallee

    Brain Images Just Got 64 Million Times Sharper

    This is early technology that will be limited to research for years. Fortunately, this is where we need this technology. In the end, IMO, all progress is ultimately technological, and this is just as true in medicine. Individual abilities, models, guidelines, paradigm, they matter very little...
  19. rvallee

    Brain Images Just Got 64 Million Times Sharper

    Brain Images Just Got 64 Million Times Sharper https://today.duke.edu/2023/04/brain-images-just-got-64-million-times-sharper A single voxel of the new images – think of it as a cubic pixel – measures just 5 microns. That’s 64 million times smaller than a clinical MRI voxel. ... Some of the key...
  20. rvallee

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Politics. As long as the issue is politicized and our needs conflict with their intent, we will be crushed. Until we aren't. If it can happen for peptic ulcers, it can happen to any disease. But until the breakthrough, it's all politics all the time. We need something. They want the opposite...
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