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It is very strange if smokers are more immune becasue smokers are more likely to have cardiac problems, hypertension, asthma and COPD which are all risk factors

Actually, I have been thinking about this and maybe I was actually moderate when I think I was mild! I have never had a job but I tried holiday work and only managed a few weeks before I crashed badly. The biggest problem with categorising ME is that it is so much worse than anyone...

I know a lot of people with MS and even the ones who can't work are only limited in the way people with mild ME are. The difference is they are allowed to be disabled. Conversely, some people with ME are forced to work with bad disease because they can't get benefits because of the lack of...

This was just released by the Scottish Government "A new helpline has also been set up to support people who are vulnerable but not in one of the shielded groups. Opening on Tuesday, it is intended for those who are elderly, pregnant, in need of mental health support or in receipt of the flu...

For me, I think mild is when you can do things normally interspersed with episodes of ME which can be as bad as anything the severe experience. This fact is forgotten too often as if the disease was homogenous and not the variable entity it is. Variability of symptoms was seen as one of the...

I have come across this on forums where people have been so pleased with getting this diagnosis. I don't feel i can destroy them by telling them what I know, then I wonder if that is wrong because they will feel foolish when they find out. It's like seeing your best friend's boyfriend with...

I am seeing more and more people who say they have a functional neurological disorder in newspaper articles and social media, so there must be lots of people getting diagnosed with it. It's strange, because I would be ashamed to tell anyone I had been diagnosed with FND. They can't know what it...

Yes indeed. The early papers about FND are full of caveats especially about movement disorders which are difficult to diagnose but these were just quietly dropped over the years instead of being researched. If they were truly interested in patients, rather than their theories, they would have...

My daughter is a nurse on covid19 wards. She says they are going to be trained to use CPAP machines as they are simpler than ventilators so don't need specialised training.

Yes, she was severely ill. It is heartening that some recovery is possible.

Psychological support is not offered to patients with MS unless they have psychological symptoms like anxiety or depression and ask for it. It has no place in a discussion of the needs of patients labelled with FND This sounds like one of the patients who have accepted the FND diagnosis out of...

I would have expected there to be more awakenings if there was more awareness of emotions rather than less. Anxiety disrupts sleep, as well as wakening during the night can lead to more dwelling on things we are anxious about. They have found numbers from artificial scales that only show up how...

I find that any repeated movement can reduce me to a paralysed lump eventually. The definition of ME as a disease where you can lift a bag of potatoes over your head once but not lift a spoon to your mouth five times captures much of my disability but does not seem to be well known among...

Post viral fatigue states were once seen as a thing that happened and lasted up to about 2 years. Glandular fever was also known to have a drawn out resolution as was things like giardia. It was never confused with ME. Once they started pushing CFS and making it all about fatigue rather than an...

If that is the one I remember, it was really clear and interesting, especially when you think that cellular mechanisms seem to go wrong in ME

It all comes down to risk. You can be super vigilant and some stray virus wafts in as you open a door and you get infected or you can be casual about everything and still not get infected. I read that only a small percentage of people in China became sick. The biggest risks are eliminated by...

I saw one that looked interesting but I do not have a link. Take an ordinary A4 plastic page protector and open the channel with the file holes with a little snip at each end so you can thread a plastic hairband through. Slip hairband over head above ears. Even my ME challenged hands could...

The interesting thing about the ME epidemics is that the people who got sick were all active. In the Royal Free the staff became ill while the patients did not. Also there was an epidemic in a convent where the nuns were contemplative (lots of praying, not a lot of activity) and did not get sick...

So it is a bad thing promoting the hegemony of masculinity. This is in direct opposition to the encouragement to get children exercising! Maybe it is just because it is fun! Or maybe women are actually dominant and/or wiser and send the men out early on cold, damp Sunday mornings to take the...