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Could the clinics be encouraging people to sing petitions to keep them open or expand the service?

The most likely explanation is that ME causes sickness response or even sickness behaviour like taking to your bed because ME is a serious debilitating illness. I have always been dubious when they say that if we stop acting ill we will stop being ill.

I have said before, my parents worked very physically for long hours in a factory for very little and came home exhausted, they certainly never "exercised" as we know it. My children's generation work long hours for very little sitting at desks in call centres and come home too exhausted to...

If the Workwell results are correct, and what they have found matches my ME very well, we have broken aerobic energy production systems in our cells. When a cell is set to work it uses an anaerobic respiration pathway which produces pyruvate and 2-5 ATP. After a few minutes the accumulated...

If people only took opioids and gabapentin and pregabalin the way they are prescribed it would save a lot of deaths too. We are lucky to live in a time where relief for pain is available but it is getting harder and harder to get because some people abuse them. One headline was about the...

I think that BPS issues, while important to us, are not particularly central to most doctors. They are told certain things and believe them because people with expertise in that field should know what they are talking about whether it is FND or kidney failure. Patients who worry about every...

When I was less affected and undiagnosed I was able to look after my children and run the house. I felt the illness didn't stop me doing anything it just took all the pleasure out of life. Things I would have enjoyed were just got through before I collapsed. I still feel I might answer yes to...

This is a good example of how trivial much of medicine is becoming. Once, a doctor would have questioned the patient to see if they had depression, now they get you to fill in a questionnaire, and score it without any reference to ambiguities. Or they do a blood test with figures taken as...

I don't have the reference offhand and I don't feel strong enough to plough through the dross to find it but one paper suggests that FND should be considered if a woman turns up with a supportive husband with her. The old mysogynist ideas of women using their health to chain a man are...

It is difficult to underestimate the value of these articles. We have a large community nowadays, information is easy to come by and there are charities like Invest in ME working to forward the science. It was not like that at all. All we had was the wishy washy ME association and doctors and...

Psychological treatment can help social anxiety by giving patients techniques to help them. Things like reciting the alphabet or tapping your arm, taking deep breaths, things like that. They also do role play for situations. It is all designed to help with the flood of adrenalin in situations...

I have a strange feeling (lots of them!) but something I read recently makes me wonder if it is an enlarged spleen. I'm never going to know as I can't bear the thought of visiting a doctor and risking hurt and humiliation, just told my family to mention it if I am in a car crash. I doubt it is...

An important thing to remember in any discussion of ME and depression is that the symptoms of ME are taken as being the symptoms of depression. I've just done the https://assets.nhs.uk/tools/self-assessments/index.mob.html?variant=42 mentioned previously These are the questions. 1. Have you...

It also misses the glaring fact that childhood abuse involving being slapped round the head or malnutrition or neglect leading to developmental delay can cause neurological problems directly without involving the emotions. Being in a car crash bangs the brain about, relationship problems can...

Symptoms vary between us and for each of us over time but they are all pointers to having ME. There needs to be a list of symptoms that many people have but not all. This is true for lots of illnesses and is only a problem if ignorant doctors start excluding people because they do not have the...

ME is so complex. The Workwell findings, as I said, mirror my illness very well, but .... They are not the only thing going on, they are the consequence of whatever is going wrong for us which is on happening at a biochemical cellular level. My worst consequence came when I improved my fitness...

My friends with MS talk about the cognitive problems as being one of the worst symptoms (after fatigue!). Umm, I did not read the paper but how did they measure "the temporal discrimination threshold" if someone has a movement disorder it will take them much longer to react to anything as...

Yes, their research may be wrong or be superseded one day but it is the first which matches my symptoms so exactly. Every new thing I read about their work is just a better description. It has given me a way to think about what is happening to me and, even better, it has given me a way of...

Without getting into another area of controversy, after the Kennedy assassination there was not a great conspiracy to silence the critics, it was all done in a quiet, individual manner that actually made it more effective as there was nothing much to point to. Owners of newspapers had quiet...

Could this be the statement of someone who has been pressured into keeping the paper but thinks that anyone reading it as it stands now will see what rubbish it is?