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Thanks for the laugh, @Jonathan Edwards. That to me appears to summarize pretty well how the proponents of the cognitive-behavioral approach to ME view the alleged benefits of LP. Michael Sharpe on the SMILE trial: "This trial tests the effectiveness of a commercially available brief...

Thanks, @Snow Leopard . I changed "praised" to "defended", based on that quote: "In sum, it is rather extraordinary for me to find myself in the position of defending a study that is not in my area and that claims to find a benefit from a pseudoscientific intervention. However, since you ask...

Thanks, @Woolie. It was meant ironically. I'm aware that she even praised defended the SMILE trial. http://www.virology.ws/2018/06/25/trial-by-error-my-exchange-with-professor-bishop/

Ungar, N., Rupprecht, F., Steindorf, K., Wiskemann, J., & Sieverding, M. (2019). Worse or even better than expected?—Outcome expectancies and behavioral experiences in the context of physical activity among cancer patients. Journal of Health Psychology. doi: 10.1177/1359105319832345...

Apologies for just popping in, but when I saw this tweet I thought maybe Dorothy Bishop wanted to write a commentary? edited to add link: "Science has a problem. Here is how you can help..." http://backreaction.blogspot.com/2019/03/science-has-problem-here-is-how-you-can.html

Whenever I handed over to my doctors a summary of what German charities judged as relevant biomedical research on ME, since 2015 also the IOM report, most doctors understood that as evidence of me having unhelpful illness beliefs whereas one understanding neurologist advised me to not enclose...

In Germany, CFS is mostly treated as psychosomatic /somatoform disorder -- bad enough. But I don't know of any patients diagnosed with "CFS" that were treated with electroshock. It's not mentioned in any guideline on somatoform disorders or fatigue either. Antidepressants are standard...

Thanks for your opinion on this. I thought maybe they wanted to show that they attempt to (or give the impression to attempt to) appreciate some patients' experiences as well as some of their colleagues' research endeavors despite they judge both as unsound. They neither explain how they got...

Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical Immunology, Volume 142, Issue 3, 1008 - 101, https://www.jacionline.org/article/S0091-6749(18)30854-6/fulltext (letter to the editor) I found this...

17 June 2019 Amended Addition of new published note: 'Cochrane’s Editor in Chief has received the revised version of the review from the author team with changes made in response to the complaint by Robert Courtney. The process has taken longer than hoped; the amended review is being finalised...

Martin's Jester Challenge against Myalgic Encephalomyelitis Single-handed sailing from Plymouth to Baltimore for OMF because Millions of lives are ruined by this condition. https://www.justgiving.com/fundraising/martinsjesterchallengeforme

Presumably yes. But first and foremost I think it means that ethics committees have never erred, nor will they err to all eternity.

http://www.virology.ws/2019/06/05/trial-by-error-my-follow-up-follow-up-with-dr-segal-about-lp-study-citation/

:thumbsup::emoji_four_leaf_clover:

https://www.s4me.info/threads/stanford-community-symposium-2018-fluge.6037/#post-113118

Anyone feeling up to edit some of the pages recently cited with regards to the 'CCI-ME' story? https://www.me-pedia.org/wiki/Craniocervical_instability https://www.me-pedia.org/wiki/Intracranial_hypertension Perhaps at least add links to the discussions on S4ME? :ill::( Moderator note: This...

Moderator note: This post was copied, and subsequent posts discussing it, have been moved from this thread: Biomedical articles on MEpedia - purposes and pitfalls Discussion of MEPedia policy on its science articles and what should be included continues on that thread. Anyone feeling up to...

-> https://www.s4me.info/threads/understanding-the-lightning-process-approach-to-cfs-me-a-review-of-the-disease-process-and-the-approach.4888/ ;)

Thank you, @JenB I didn't say you were. Yes and I think more caveats are needed than those you have already been making. Please try to understand the financial, emotional and also healthwise burden that pursuing a CCI diagnosis plus the special requirements you and Jeff think are needed so...

The problem to me seems that the way you report your story [edit:] online, also on Medium and elewhere, encourages people with ME to pursue CCI diagnosis. Given the considerations made in my previous post and by others, I find this distressing. Edited to add: I don't understand why this...