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Just some cherry-picking from the Stone/ Sharpe/ Carson paper (2005): Collapsing weakness midline splitting Movement disorder Dizziness Speech and swallowing symptoms Visual symptoms Investigations CONCLUSIONS: ASSESSMENT AND DIAGNOSIS edited to add: see also...

Wessely et al 2012: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3277687/ Stone & Sharpe et al 2005: https://jnnp.bmj.com/content/76/suppl_1/i2

Just recalled @JohnTheJack's finally successful FOI request. So I guess I'll have to wait until the actual release of the requested data and whether these data will answer @Esther12's question? Thanks for all your work regarding this ridiculous SMILE trial, @JohnTheJack and @dave30th , and...

I'm aware that @dave30th and others have written a lot about the SMILE trial. That this trial already has been debunked doesn't seem to have reached a wider, non-ME-informed audience, though. Just am thinking a *short* article addressing some non-ME-specific issues which could interest a wider...

Thank you, @Andy! ETA: German language version:

Could someone who is on Twitter please add, in English language, that this Dutch ME charity is happy to receive and forward donations for David Tuller also from outside the Netherlands? See my post above...

A reminder for those who don't have credit cards: An easy way to donate without a credit card is offered by the Dutch ME/cvs vereniging (a registered charity), at least for people having a bank account in the SEPA* countries: You can donate via bank transfer to the ME/cvs vereniging with...

Former post/ part III contained wrong paragraph -- now fixed. Apologies for the confusion.

Only have energy left for one comment: I think the argument that labeling ME as a mental or psychiatric illness stigmatizes pwME is a bad one. It's true that mental/ psychiatric illnesses are still being stigmatized. This can IMO only be addressed by rejecting the stigma. To use the argument...

Part III (edit: former version contained wrong paragraph -- now fixed) Translated with www.DeepL.com/Translator

Part II

So, here are the other parts of the petition, translated by deepl: ( https://www.deepl.com/translator )

Thank you, @Inara for providing a translation of the petition's basic demands and explaining the German abbreviations and terms. I would not have been able to do this ATM. One of the most annoying effects of having ME for me is not being able to participate properly in discussions, at least...

For those who don't have a credit card: (Deepl translated: ) "You can also donate via the ME/cvs Association, which will donate this to the crowdfunding. And is a recognized charity (ANBI). IBAN: NL85 INGB 0004 2869 57 t.n.v. ME/cvs Vereniging in Zuurdijk with reference to 'David Tuller'."...

Thanks, @adambeyoncelowe . The "article" showed up at a google news search on „Chronic Fatigue Syndrome“. At a second glance I see how manipulative the contributors' CV are. I'll copy some extracts to not cause more traffic: (This is text that displays under Andy's ("his") picture. I doubt...

EDIT: Please read @adambeyoncelowe 's comment first: Writing about Chronic Fatigue Syndrome: What Should Every Student Know? by Joe Blair, Health Thoroughfare (not a serious site), 19.03.2019 :arghh::confused::grumpy...

I replace 'strange' with 'remarkable' and I think it's telling which quote of a particular regional charity's member Kelland chose to use. But do the Daily Mail and the Times have really set a firm agenda on reporting on ME? Have they never talked to reliable spoekespersons of the larger ME...

Maybe it was about him being one of the centre leaders and thus a member of the trial management group? "The PACE Trial Management Group is credited as an author of the PACE trial. It was responsible for the day-to-day running and management of the trial and met periodically throughout the...

I also appreciate Frances Ryan's article and think it's very good. Her focus was Liddle. We can't push someone who is not responsible for publishing the Reuters and other twisted articles to write on what we see as more relevant to us. And as others said, it might have provided a good soil for...

Yes (and thanks for adding the word "lacklustre" to my vocabulary). But it's also strange that journalists apparently didn't try to get a comment from the charities and their medical advisors. (The Daily Mail article at least linked to a video with CS.) I am thinking about how journalists and...