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How I look forward to reading a Tuller piece on "Sound Studies on ME" some day. (Edit: This is not meant as criticism. I understand the need to criticize the many bad studies--it's just a certain kind of longing...)

I like that paragraph: I agree that it might be better not to criticize D. Bishop directly and to name particular trials on ME only as examples as a general problem that all trials on therapist-delivered treatments bring with them if they don't apply any objective outcomes and at the same time...

https://www.noisolation.com/global/av1/alternative-provision-innovation-fund/ Moderator note: thread on this project here https://www.s4me.info/threads/uk-hospital-and-outreach-education-granted-£500k-to-provide-continued-education-to-children-absent-from-school-due-to-long-term-illness.8532/

Moderator note: message copied from thread here https://www.s4me.info/threads/my-robot-makes-me-feel-like-i-havent-been-forgotten.5552/#post-148826 https://www.noisolation.com/global/av1/alternative-provision-innovation-fund/

I wrote about my experience with food intolerances diagnosed as "pseudo-allergy" here: https://www.s4me.info/threads/pseudoallergy-and-food-intolerances.7751/

Perhaps except for special fragrances like certain perfumes? see: Patch-test results of the North American Contact Dermatitis Group 2005-2006, Dermatitis. 2009 May-Jun;20(3):149-60. "Other common allergens were topical antibiotics, preservatives, fragrance mix I and paraphenylenediamine."...

Do viral load and other blood work they did actually indicate the severity of infectous mononucleosis? Did they document how long the patients suffered from acute IM? I have no idea but I guess that documenting high temperature, measuring the number and size of swollen lymph nodes and the size...

I'm concerned about this, too. I first thought maybe some people are reaching for FND to give ME symptoms a new label and a new trial. But I found so many similarities in the language describing FND and in the PACE adherents' language, that I think that it might just be a common ground of...

Just was reminded of a different institutionalized approach to unexplained illnesses -- the ZusE Marburg (center for undiagnosed/ unrecognized and rare illnesses) first see them as (yet) "unrecognized", "undiagnosed" or "unidentified" illnesses, and second, take into account that suffering from...

https://en.wikipedia.org/wiki/Archive.today

Yep, see: https://www.s4me.info/threads/mus-services-in-uk-and-other-mus-related-issues.8318/#post-146602 link to the video: https://mus.elft.nhs.uk/ Also, Hennigsen co-edited with Per Fink: Creed F, Henningsen P, Fink P: "Medically unexplained symptoms, somatisation and bodily distress"...

It seems the investigators found a need to "stimulate" demand for their own future studies and treatments...

;) To be fair, I saw this tweet:

O'Connell, N., Nicholson, T., Wessely, S., & David, A. (n.d.). Characteristics of patients with motor functional neurological disorder in a large UK mental health service: A case–control study. Psychological Medicine, 1-10. doi:10.1017/S0033291719000266 (Paywalled) Abstract @Jonathan Edwards

So how would you name it, @Esther12 ? I am quite brain-fogged at the moment, but I maybe tried to make a similar point here: https://www.s4me.info/threads/intimidation-of-pace-critics-or-critics-of-other-psychosocial-research.8261/#post-145614

Perhaps some additional useful quotes here? https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-44#post-786584

Thank you to ME/CFS News for initiating this, and thank you to all who are contributing. I am too ill ATM to contribute properly but would like to suggest to choose another title for this ME-pedia page. To me, these are no doubt attempts to intimidate PACE critics. But I think it would be...

Apologies if this had been already posted - just saw this when I checked which Cochrane sites were currently availble: https://www.cochrane.org/news/cochrane-seeks-editor-chief-cochrane-library "Dr David Tovey, Cochrane’s first Editor in Chief, is stepping down at the end of May after 10 years...