Search results

I see no drama, only a dramatic increase in donations.

It works! But did you intend to have the updates still only on the old site (https://crowdfund.berkeley.edu/project/14941/updates/1 ) and not on the current crowdfunding site (https://crowdfund.berkeley.edu/project/20159/updates/1 ) ? Glad to hear that your mother seems to be safe and very alert.

... and the now added link / 3. update on the old site doesn't go to the project[edit] crowdfunding site at all.... :emoji_tea:, @dave30th ? Edit 2: The link is fixed now but the updates are still only on the old site (https://crowdfund.berkeley.edu/project/14941/updates/1 ) not on the...

The update seems to have been posted on the page from last years' crowdfounding - at least the link posted above(*) directs me to the old page @dave30th (*) as well as the link in the UC Berkeley e-mail.

Thanks for explaining, @dave30th , and thanks @Michiel Tack for substantiating some criticism. I agree it's important to differentiate, and to take the historical context into account. (I don't know the details to understand which therapy is GET in the sense of the cognitive-behavoristic...

Hm, are you sure? The reference cited in @Dolphin's quote from the other Broadbent paper is: Wallman, K. , Morton A., Goodman C., Grove R., and Guilfoyle A.. 2004. Randomised controlled trial of graded exercise in chronic fatigue syndrome. Med. J. Aus. 180:444–448...

How To Stop Face Masks From Fogging Up Your Glasses https://www.forbes.com/sites/rachelsandler/2020/04/16/how-to-stop-face-masks-from-fogging-up-your-glasses/#6aa930b12e6a

The Royal Society of Medicine (UK) COVID-19 Series, Episode 6: Policymaking on masks for the general public: evidence-based or eminence-based medicine? Webinar, Tue 21 Apr 2020 from 12:30pm to 1:00pm https://www.rsm.ac.uk/events/rsm-studios/2019-20/pen65/ :emoji_mask: Edited to add...

Haven't read the paper, but was surprised by this: Exclusion criteria •The fatigue intervention included one or more other fatigue management approaches (for example cognitive-behavioral therapy, exercise) in addition to energy management education. So there are CBT-and-exercise-free...

The paper isn't open access anymore (at least for me) -- sci-hub link: https://sci-hub.se/10.1177/0308022620904327

Papers referring to the different versions of the review: https://app.dimensions.ai/details/publication/pub.1121431847 Among the four publications refering to the current version, the paper by Andrew Lloyd & C. Sandler discussed here isn't listed yet. Interesting that the review's current...

Since all of us -- PWME as well as health professionals -- have to cope with the situation caused by the pandemic in some way, I was thinking whether S4ME should consult with other patient organizations/ actual stakeholders to ask Hilda Bastian to name and possibly extend the time frame for the...

Amendment of the current version of the review: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew Amended 12 March 2020: Note added from the editorial team at Cochrane Editorial and Methods Department on 12 March 2019, 'A webpage providing...

Not sure whether this has been posted yet: Stakeholder engagement in high-profile reviews pilot https://community.cochrane.org/organizational-info/people/central-executive-team/editorial-methods/projects/stakeholder-engagement-high-profile-reviews-pilot FAQs last updated 10th March 2020...

Thank you to @dave30th for putting the advices from ME Association’s Dr Charles Shepherd on Virology Blog: Among many other useful things, I think it's helpful that CS makes a clear statement about drugs and supplements...

:heart::thumbup: @dave30th , @Gecko and all involved

Dr. Shepherd from the ME Association: @Tom Kindlon

Update from Berlin regarding public transport https://www.tagesspiegel.de/politik/coronavirus-legt-die-hauptstadt-lahm-wie-sich-berlin-in-quarantaene-begibt/25643520.html Translated with DeepL

Update from Berlin regarding closure of daycare centers https://www.tagesspiegel.de/berlin/nach-kritik-des-corona-spezialisten-drosten-berliner-senat-verzichtet-auf-zentrale-not-kitas/25645052.htm Translated with DeepLl

Thanks @Wits_End for posting an excerpt. As much as I appreciate that she reaches out to pwME in this extra stressful situation -- to me the part where she recommends supplements and drugs for all pwME adds uncertainty about the scientific credibility of one of our important advocates. Sorry...