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It is really odd, @Wyva, I've heard of people getting severe oedema with lupus before, but not with ME. It's frustrating that no-one will take it seriously. I know strange symptoms can occur without any explanation being found, but they can also be a sign of an underlying issue. You'd think...

Flaming Nora, BBC! Could bears poop in the woods? Whole thing's terrifying, though, specially for the millions who have no practical alternative but to eat processed foods as a significant part of their diet.

It looks really interesting, doesn't it. I wonder if the fact that numerous vaccines seem to offer some protection may mean it's partly an effect of the immune system being slightly activated, rather than a specific vaccine or infection. I wonder if anyone will follow it up in the years...

That be good ole' Michael Sharp.

I'd even be happy with a non-disease specific one! Which might be more likely in the scheme of things. There seem to be other instances of this, where X result = Y or M or B, and very occasionally F. There then has to be further refinement based on the signs and symptoms to decide which, but it...

I've always been intolerant, so I don't think ME is behind mine. The worst symptom is the muscle pain, which starts about 15 – 20 minutes after ingestion, and the nausea follows soon after. My skin flushes and burns like crazy, but I think that's just a histamine thing.

Especially when it comes to people of colour. There has been some suggestion that Black populations have a higher incidence of schizophrenia (or at least, a higher rate of diagnosis). The story of April hit me hard, because it's that of one of my close school friends. She excelled at everything...

I could show you mine, which I was asked to sign around 10 years ago to confirm that it had been issued. It contained my name, address, date of birth, and NHS number. No diagnoses, no medication details, no record of the fact that I'm a wheelchair user. All the pages except the patient ID...

Wonder if it's worth staking 100kr on the announcement of a brand new long Covid centre?

People who have it may be able to. When I developed inflammatory arthritis, it came with a new type of fatigue. My GP didn't believe I could tell the difference, but it was fairly obvious to me. The new type was a pretty constant line across a graph, whereas my ME fatigue looks like a child's...

On the other hand, if I'd filled it in at a couple of points in my illness, I'd have said 'improving' or 'recovered'. I had fluctuating ME, which like investments can go up and down over time!—but even after several years of illness, I didn't yet understand that. For people like me, it'd be a...

I've come across several people (although not ME patients) who're very afraid of dental treatment, and the consensus seemed to be that dentists are pretty good at understanding this. Many are willing to offer a dose of Valium before they start the treatment. I shared an office for years with...

If they changed it to "modern living conditions", it would make sense in Britain. Huge swathes of the population lives with chronically insecure housing, too little income to cover their costs, exhausting and often menial work in stressful conditions, an uphill battle to access all basic...

I've seen several ads on Facebook, at least four or five different versions. The photos used have been really good.

I'm in the weird position of not even knowing for sure when I technically went through menopause. My periods stopped dead at age 44—I just never had another one. I'd had hideous endometriosis, so I couldn't believe my luck! I mentioned it to the GP, but she said that it's not unheard-of for...

Done.

Presumably you've tried pressing the hash key as soon as it connects? This works on fewer and fewer systems now (it used to work on nearly all of them), but I can still get straight through to the GP surgery if I time it exactly right. Since it only takes a second to press a button, I always...

Had Covid jab No 5 a few days ago, the updated Pfizer. Nothing by way of a reaction so far. :emoji_fingers_crossed: It all felt so different, though! No vaccination centre, just a small pharmacy; no precautionary wait in case of a reaction; no paperwork. Obviously he went through the usual...

Yes, and offers free testing world-wide – that's such a great facility to include in their study.

But when pwME are heading downhill, they're no longer uplifts, are they? By definition, they're now hassles. Jaysus, this is basic stuff.