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Trial by Error by David Tuller: My Letter to Author of CODES Commentary Earlier today, I sent the following letter to Dr David Perez, a neurologist and psychiatrist at Massachusetts General Hospital in Boston. Dr Perez, an expert on functional neurological disorders, wrote a commentary for...

So glad to hear you feel it helps you @pteropus !! I can imagine that was a wonderful day to be out in the sunshine again after so long time :) It's still early days here, but no side effects at least so far.

Just noticed this article in a Danish journal for medicine and health about a large sum which was allocated to optimise treatment opportunities for patients with hypothyroidism. In March this year some of this money got redistributed to include treatments of functional disorders. So if any...

Trial by Error by David Tuller: CODES Trial Commentary Promotes "Eminence-Based Medicine" By all accounts, the recently published CODES trial was the most authoritative study to date of whether cognitive behavior therapy (CBT) was an effective treatment for so-called dissociative seizures–a...

Here's the quote from Ed Yong: - Other viral infections and other diseases have led to similar ways of symptoms before and conditions that present in similar way, like ME or Chronic Fatigue Syndrome. People with those conditions have long been dismissed. They’ve been told that their diseases...

It's up now. Looks good, am looking forward to hear it. wbur: Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality Guests are dr. Mafuzur Rahman and Ed Yong. Link has the reading list.

The Week: Coronavirus and ME: doctors fear wave of chronic fatigue syndrome Article quotes NHS, The Washington Post, CDC, The Atlantic and BMJ As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in...

Amazing!!

The BMJ - When will we be well again? By Helen Salisbury With other illnesses I can map out the territory ahead and discuss the usual course of events I would expect to see in patients with similar conditions. Although timescales may be imprecise, we have some experience and textbooks to guide...

Trial by Error by David Tuller: More Questions About CODES Trial of CBT for Seizures Post-CODES, it should no longer be possible to assert that CBT is a treatment for dissociative seizures. At best, it appears to be an intervention that can provide some patients with the kinds of psychosocial...

Fox10 Phoenix "Today is day 93": People report experiencing COVID-19 symptoms that last for months Dr. Mady Hornig, an immunologist and professor of epidemiology at Columbia University who is currently researching the long-term effects of a viral infection like COVID-19, has been confronted...

BMJ - Paul Garner: Covid-19 at 14 weeks - phantom speed cameras, unknown limits, and harsh penalties What is worse is that there is increasing evidence that some doctors are dismissing this illness. People write, “I am desperate! My doctor says I have anxiety, but I know this stuff is real”...

Abstract: BACKGROUND:Cochrane recently amended its exercise review for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in response to an official complaint. OBJECTIVE:To determine if the amended review has addressed the concerns raised about the previous review and if exercise is...

Wonderful that it's available for all to see! Yes, it was excellent :thumbup:

(Article with interview of Muirhead is paywalled)

Spotted this on twitter today and warmly recommend it! It took me a while to realize that the way I saw myself and the way I was treated was directly caused by the harmful cultural stories we tell about injury and disability and health and accommodation and value. Those wrong maps are the...

A Norwegian news site for research has written an article about the music therapy study. The journalist is Ingrid Spilde who has written several good articles about ME research before (including the PACE trial). It seems she's actually read the study and sees through the spin. Wyller is...