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  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Based on the recent articles on this trial on Lightning Process, Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM) has issued a statement concerning LP. They will also contribute to cooperation by organising a conference about LP in order to advance further...
  2. Kalliope

    Patient's experiences and effects of non-pharmacological treatment for ME/CFS - a scoping mixed method review - 2020 - Mengshoel et al

    International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome - Anne Marit Mengshoel, Ingrid B. Helland, Mira Meeu, Jesus Castro-Marrero, Derek Pheby & Elin Bolle...
  3. Kalliope

    News from Scandinavia

    I think you are raising a good point! But I wonder if Grete Lilledalen's take might reach more people. According to a lot of health care workers in Norway, ME is a stress disorder or something similar that can be helped with psychotherapy. They've been told this numerous times from sources they...
  4. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Another blog post from Tuller about this trial. He also mentions the newspaper article which defended a planned trial on Lightning Process - discussed here. Norway’s got a double whammy going on. First there’s the group of investigators that seems to have had trouble determining whether their...
  5. Kalliope

    News from Scandinavia

    A great opinion piece by psychologist Grete Lilledalen in the medical newspaper Dagens Medisin. She has written articles and opinion pieces about ME before and is good at explaining the patients' situation and the debate for fellow health care workers. When new methods are used and patients are...
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Yes, it's probably not a good idea to write as a patient, particularly not while having brain fog :laugh: It would be wonderful if someone had the capacity to write a piece. But I also fully understand the necessity of picking one's battles when there are so many to choose between.
  7. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    He is Rector of the University of Oslo.. Khrono - where prof. Svein Stølen wrote this opinion piece, is an independent newspaper for higher education and research. Could be an appropriate place for a debate on research methods and what is the actual reason behind patients and academics being...
  8. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    ABC News: Coronavirus patients with even mild cases of COVID-19 are taking months to recover and suffering extreme fatigue Professor Garner is still dealing with exhaustion. "It gives you some of the symptoms that are very similar to chronic fatigue but I am hesitant about calling it that," he...
  9. Kalliope

    Press release on Danish dissertation on mitochondrial dysfunction - defended by Ana C. Gonzalez Ebsen

    Press release from Aarhus University, Denmark (uploaded by the Danish ME Association). The press release is both in Danish and English. Title of dissertation: Mitocondrial dysfunction in an inborn error of metabolism and in patients with unexplained chronic fatigue. The aim of this PhD...
  10. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The research director at the Norwegian Institute of Public Health - Signe Flottorp from the Dagbladet article on twitter
  11. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm really saddened to see that they're presenting ME patients as anti science. Just for being critical of a study where the effects of a product will be researched by one of its biggest salespersons. A product patients have reported being harmed from. ME patients are doing an enormous effort...
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