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  1. Kalliope

    RSVP Live - "Dublin mum shares warning signs of ME in children after daughter's diagnosis aged just 7"

    "Most of the parents I speak to going through this, say one of the hardest parts has been the constant fights with the doctors to get a diagnosis, to get help managing the symptoms but also just the isolation from family and friends not really getting it", Sarah admits. "You’re constantly...
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Trial by Error by David Tuller: Some Stuff about Long-Covid, BMJ and ME It is clear that there will be much grappling going forward over the similarities and differences between long-Covid and ME (or CFS, or ME/CFS, or whatever this illness or cluster of illnesses is being called). The two...
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thank you for the quote, @Rick Sanchez This wading in cognitive dissonance is fascinating to observe..
  4. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Could that expert you listened to possibly be the other professor who made the chart of long covid symptoms; prof. Jens Lundgren? I read an interview in the journal for the Danish Medical Association with his daughter, who is a doctor and struggling with symptoms following Covid, including...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Danish Broadcasting Corporation DR has an article about long covid today. Expert interviewed in the article is Lars Østergaard, professor in infectious diseases at Aarhus University. He talks about people not being able to perform at work. Many patients having problems with concentration and...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The journal for Norwegian physiotherapists (Fysioterapeuten) has an article that recommends as much activity as possible for Covid-19 patients. Their source is the British The Chartered Society of Physiotherapy (CSP). The article says the amount of activity might vary from person to person and...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The reference is to p. 20 in the NHS document Aftercare needs of inpatients recovering from COVID-19 (2. version) where it is stated: Although some people who have had COVID-19 may experience post-viral fatigue, there does not appear to be an association with post-viral fatigue and diagnosis of...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    LBC (Leading Britain's Conversation) 'Long covid' sufferers tell of battling debilitating symptoms that last for months For Prof Garner, who regularly writes for the British Medical Journal on the topic, he compared his "extremely similar" symptoms with that of chronic fatigue syndrome...
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    MedicalNewsToday: 'Ill, abandoned, unable to access help:' Living with long COVID “I think we, as medical professionals, need to be better at saying ‘I don’t know what’s wrong, but I’m willing to go and read up more about this’ […] You know, we’ve all been faced in the past with patients with...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Guardian: Coronavirus: 60,000 may have 'long Covid' for more than three months - UK study Tim Spector, a professor of genetic epidemiology at King’s College London who runs the app-based Covid symptom study, said around 300,000 people had reported symptoms lasting for more than a month. A...
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Age: Long-term effects of virus shine a light on chronic fatigue sufferers Opinion piece by Sue Green It would be utterly perverse to say I’m glad COVID-19 leaves some sufferers with long-term symptoms, including crippling fatigue. I wouldn’t wish that on anyone. But as one who has coped...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Public Health England Guidance: COVID-19: long-term health effects Published 7 September 2o20 Persistent health problems reported following acute COVID-19 disease include: respiratory symptoms and conditions such as chronic cough, shortness of breath, lung inflammation and fibrosis, and...
  13. Kalliope

    BPS attempts at psychologizing Long Covid

    Agree. There's still a long way to go. But Vogt's BPS-approach to the world won't automatically be accepted when the subject is something other than ME. This may come as a surprise to him. It's a small victory, but still..
  14. Kalliope

    BPS attempts at psychologizing Long Covid

    As everyone have full attention on Covid-19 at the moment, I expect he will meet more resistance from peers than what he's used to from when he writes about ME and Lightning Process. Vogt was put abruptly in place by a doctor and researcher after having written an opinion piece about creating...
  15. Kalliope

    A general thread on the PACE trial!

    Just listening to the last episode of the podcast This Week in Virology where they're discussing how to run proper vaccine trials. At 98.38 min: - 30 000 people is not a trivial number to recruit. If that's what you think. To have a properly powered trial, then that's the number you have to...
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