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Ah, so this could be about something else then?

ETA: It was first thought that Keele university had removed a blog post on MUS by prof. Carolyn Chew-Graham, but turns out the whole blog section is down.

Not as far as I know. The letters that I thought were new had already been written about in @Marit @memhj 's link. I had just gotten confused with the dates. Who knows what the next step will be. I feel anything could happen :(

The Norwegian ME Association released a 20 minute YouTube video today with a conversation between two health care workers talking about young ME sufferers. It's professor and paediatric neurologist Kristian Sommerfelt interviewing psychologist Ketil Jacobsen. They've both worked with young ME...

Agree. There's no golden mean here. They must take a look at the evidence, listen to the patients and make a choice.

They received some comments about the study in that Facebook post, and just replied (translated from Swedish): this study is very well in line with how we work at bragee rehab, that's why it's featured here in bragee rehabs's fb flow. ETA: Earlier today they said in another comment that they'd...

Seems the link is no longer working. Was it to this presentation or to a specific article? http://www.investinme.org/IIMEC15.shtml

Hi @Octogenarian That was a quote from MEA's press release. I don't know further details unfortunately, but I'm sure other forum members will :-)

Had a look at the front page of SCOPE, where there's link to another article about ME, a guest blog from a young ME patient: The impact of ME by Jenny Thisting Hi, my name is Jenny and I’m 24 years old. I’ve had Myalgic Encephalomyelitis (M.E) for 5 years but have been experiencing chronic pain...

A letter to the editor from an ME patient in a Norwegian local newspaper. It criticises the National Competence service for CFS/ME and their psychosocial approach to ME as well as the general lack of care for ME patients. Tønsbergs Blad: Kjære Høie, jeg vet det ikke en en menneskerett å være...

MEAction: Today, we honor and remember those with severe M.E. To honor people with severe ME today, we asked the community to submit their stories of what it is like to live with severe ME. Forty-five people sent in their stories. Below are some excerpts that broke our hearts, and have...

Guest blog at ME Association: Severe ME Day: Life in a Nursing Homse, Light Sensitivity and Very Severe M.E. by Eira Stuart (pseudonym) I was diagnosed with Chronic Fatigue Syndrome and then the phrases “functional disorder” and “medically unexplained symptoms” were thrown about, which made me...

MEA Press Release: Severe ME Day - M.E. sufferers hit out at "humiliating" DWP benefit assessments For Severe ME Awareness Week, charity the ME Association, lays bare the struggle faced by members to obtain the basic Personal Independence Payment, a benefit for people who may need help with...

This is the presentation of Jon Stone on the website for the upcoming conference. Didn't know his PhD was supervised by Michael Sharpe. https://my.eventbuizz.com/event/schizofrenidagene-2019/detail/speaker_detail/461790

Have never visited Stone's website before, and this might already have been shared on the forum, but find it unsettling that he links to Henrik Vogt and recovery Norge when writing about fatigue and CFS/ME https://www.neurosymptoms.org/fatigue/4594358000 ETA: He also claims (my bold): This...

I read their answer that even though their clinical experience tell them many of their patients recover, they have no way to put a number or percentage on exactly how many we're talking about. ETA: But how recovery is defined by them is also a valid question. BTW; They are nicknamed the...

I think it is the correct word. The original word is "tallfeste" (to put a number on). This is how the dictionary translates it https://www.dinordbok.no/norsk-engelsk/?q=tallfeste Perhaps "measure" would have been more accurate to use?

About the evidence behind prognosis for children/adolescents stated in the Norwegian guidelines for ME/CFS A patient have asked the Norwegian Directorate of Health why it's stated in the national guidelines for ME/CFS that the prognosis is better for young patients than adults, and referring to...