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Perhaps notable that the editor-in-chief of the Occupational Medicine journal also happens to be, as the President of the Faculty of Occupational Medicine, one of the named signatories to the RCP's sour-grapes statement about the new NICE guideline.

A Scottish Government (Health Improvement) hosted webinar for GPs on long COVID has been posted to YouTube; a copy of the slides is available here. One of the slides from this webinar was screenshotted & critiqued by one of the doctors with Long COVID who attended it last month. The intense...

Perhaps I should've said most senior interested physician. However, she has definitely been involved in producing materials for "CRESTA", their chronic fatigue service, as of last year, and is the only consultant physician listed in their management leaflet:

There is a little hint on p478 that a therapist may have written, or co-authored, the Newcastle' clinic's response: Nonetheless, it seems likely that Newton, as the clinic lead, would have signed off on it.

I'm not sure I'd draw that parallel - never seen any evidence of any increased incidence of coagulopathies in ME/CFS, although there are many such reports post COVID (e.g. there was a podcast featuring a doctor who thought he had ME but turned out to have a nonocclusive CVST featured on S4ME a...

One of the complaints in the stakeholder consultation responses is that the data extraction occurred at the longest follow-up period available (e.g. 134 weeks rather than the 52-week primary endpoint in PACE). The committee's response to one such comment says that this was "as specified in the...

As Dr Wall is the director of clinical commissioning for Bolton CCG, perhaps someone on Twitter could flag this to the charities for their liaison efforts? Could be a useful ally. Another aspect to the coding issue is that large coded data sets are increasingly being used for research; e.g...

I don't think the NICE Pathways document has yet been posted: https://pathways.nice.org.uk/pathways/me-chronic-fatigue-syndrome There's also a PDF version.

Perhaps, but the list of invitees was passed to stakeholders beforehand (post here). No rehab specialist organisations on the list.

Also, strangely, in the minutes of the round table, Lynne Turner-Stokes appears to have no organisational affiliation, being listed as "Rehabilitation Medicine Specialist". (I'd assume that she's involved with RCP London's Rehab Medicine JSC, but, if so, why isn't that stated?)

So, (some of) the Royal Colleges have turned their attention to commissioning, which we always knew would be the next battle to fight. Which patient groups are these? Are they referring to the RT? Again, sounds as though they're being influenced more by the rehab-medicine crowd like Wade &...

The minutes of the Round Table are also there, and I have a concern as to NICE's take on CBT (emphasis mine): "In the main, what is being delivered matches what the guideline recommends." (!) "NICE explained that the wording in the guideline reflects the change in emphasis of the...

And the SMC weighs in: https://www.sciencemediacentre.org/expert-reaction-to-updated-nice-guideline-on-diagnosis-and-management-of-me-cfs/ Somewhat more balanced than the selections of quotes that they've published previously on ME.

The uncritical acceptance by BACME and others of "HPA axis" dysregulation bothers me. This is based on small-scale studies with minor findings such as mild hypocortisolaemia and blunted responses to (synthetic) ACTH relative to a control group - but cortisol secretion is pulsatile and the...

Very interesting that the vice-chair of the NICE committee, Baroness Finlay, spoke up; her question was most instructive. Firstly, the phrase "through consensus agreement in the committee" suggests that these matters were decided purely on a consensus basis and did not come down to voting...

It's from Alvarez' 1935 paper "What is wrong with the patient who feels tired, weak and toxic?". I don't think anyone has posted the full, in-context quote from SW's chapter in Psychological Disorders in General Medical Settings before, so I've attached it to this post.

Abstract Objectives: This study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather than increasing activity. Design: This was a qualitative study using grounded theory...

a now-discredited study called the PACE trial. It warms my heart to see that in the pages of a major publication.

This is an utterly egregious misrepresentation. The evidence was never supportive; a cogent assessment of that evidence showed that its quality was sufficiently low to be unworthy of inclusion in treatment recommendations. I see the author uncritically regurgitates Busse's line. We really need...

Disappointing, of course, but I'm not worried overmuch about this; the guidance is surely done & will probably be sent to stakeholders for error review within the next few days. Additionally, as per the minutes of 15/03, CS had already been forced to "withdraw from all further meetings" owing to...