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  1. Wyva

    Explanation for excessive generalized edema?

    So this is something I mentioned in my introduction and doctors are really dismissive of it, but this is such a huge issue in my illness that I'd like to find some kind of answer. Sorry if this is long but I'd like to explain it as well as I can. My PVFS was a direct continuation of my EBV...
  2. Wyva

    What if they find a biomarker?

    I have actually found some other people too with the weather sensitivity thing (in other groups), so it may not be very common but some people seem to be affected. I always think it might be similar to someone with migraine and their weather triggers. Except my headaches are sinus headaches...
  3. Wyva

    What if they find a biomarker?

    I'm kind of like you. I do have PEM but my threshold is very high, so I have to do something really demanding to trigger it. However, I am almost always in a state of worsened symptoms due to extreme weather sensitivity, to the point that I cannot really work or plan because I never know when...
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