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    Medically Unexplained Symptoms and PEM (Paediatric Emergency Medicine) presentations - Dr Armstrong - 11 Jun 2020

    I read an account once of a young rheumatoid arthritis patient. She was a pre teen when her symptoms started. They seemed a bit vague at first and gradually worsened. Naturally she was distressed. She was being left behind & felt left out me her friends and classmates as she couldn't keep...
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    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    Bolding mine - I've bolded the symptoms they've listed that are very common among people with thyroid disease. These are just a few of the many, many symptoms you can get. Not a single endocrinologist on the committee that I noticed. Just saying.
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    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    That could well be their logic but it could just as easily work the other way (I'm not saying it does mind). People with lower intelligence might not live in their heads so much and therefore be less likely to get wound up about things?
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    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    Sorry @strategist you missed out a couple of important questions on the list - Do researchers in the field of psychosomatic medicine tend to have a history of repressed childhood trauma? Do researchers in the field of psychosomatic medicine have negative feelings about carrying their own...
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    Disability Benefits we can actually live on?

    Financially I'm luckier than many as my husband has an income. However, one lesson I have learned very well is to take nothing for granted. Especially a person's health. Not only are benefits not enough to live on - They can be fiendishly complicated & almost impossible for those with...
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    DecodeME - UK ME/CFS DNA study underway

    I think different people may experience PEM differently. Over the course of my illness how I have experienced PEM has varied. It may be that some.of the variation is due to increased sever but I think there's a lot more to it. In the earlier (and less severe years), once I started getting a...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    From a quote in @Robert 1973 'post above Let's not forget the upheaval when a sudden illness that everyone assumes is temporary turns into a prolonged struggle that completely buggers up your life affecting your career, finances, relationships etc. That's a massive stress right there just...
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    RCGP Online Zoom Call - Covid-19: A lifestyle disease

    I find the casual framing of diabetes as a lifestyle choice fairly shocking. While admittedly Type 2 or insulin resistant diabetes may very well be controllable, if not reversible, through lifestyle choices I don't believe it's that cut and dried. It certainly wasn't to my neighbour who was...
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    DecodeME - UK ME/CFS DNA study underway

    Be careful what you wish for. While recognizing that someone 's abnormal or lack of recovery from an infection may be due to an increased genetic risk of developing ME, increased risk doesn't necessarily mean a person will develop it. I respect some might choose to be forewarned but it's worth...
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    I'm a physiotherapist. Seeing the impact of Covid on survivors will haunt me forever

    I'm afraid it's a lot worse than that @Samuel. Though I am sure Whitney often wishes himself somewhere wonderful taking beautiful photos the neglect of this disease over decades means he can't so much as get a drink of water, shower, or speak to a friend by himself. I wouldn't use the words...
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    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    True. If someone developed a condition like POTS prior to having the chance to develop one's intelligence or prove that level via career achievements. How does one then explain the doctors, engineers, scientists and lawyers who develop these same conditions?
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    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    *Snorts derisively* In summary - We have decided to judge these people for absolutely no reason other than the fact that society lets us. Now we're getting away with treating them like second class citizens let's add insult to injury. Literally. That or it's a bet. Just how much stupidity...
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    I'm happy for Helen Nicholls that she improved. However according to multiple patient surveys GET only provides some improvement for a minority (some can be a very tiny amount), no change in others and the possibility of harm for the majority & that wouldn't be acceptable with a drug. 25+...
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    I'm a physiotherapist. Seeing the impact of Covid on survivors will haunt me forever

    Yep, it's a very binary view. So many contradictions in society's view of health. Before medicine became more accessible & advanced it wasn't unusual for people to be chronically ill. That was just life. These days for an illness to be serious you have to be at risk of death. Yet even though...
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    US podcast, On Point. - "Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality"

    Absolutely! The phrase "kicking the can down the road springs to mind". The likes of Wessely, Sharpe, Carson, Chalder etc., whether intentionally or not, have fed into the establishment view that fobbing ME patients off with bad research, treatments that don't work (at best)& put patients into...
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    I agree. Why would you fake the condition that is most likely to end up with you being accused of faking it? Surely, if you are of an age to drive googling (anything from toddler+ these days) you would do a little research to get maximum return for your faking efforts. So, be you parent or...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I agree doctors should know better. Especially doctors who listen to their patients. However, from experience of family members with very disabling long term conditions and my own experience it strikes me that while doctors know a lot about certain diseases, physiology and so on, they often...
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    Treatment for hyperthyroid

    Thyroid UK have this page - https://thyroiduk.org/hyperthyroid-basics/graves-disease/ One suggested treatment is beta blockers while another approach mentioned is use of "block and replacement" drugs. It doesn't state what the blocking drug might be. It does mention a drug called...
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