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My sister was diagnosed with Graves disease several decades ago and was treated with carbimazole. I don't think she was terribly happy on it. She went on to develop an autoimmune disease and one of the medications for that suppresses thyroid output so her carbimazole was no longer needed...

I don't want to make assumptions about your age etc @Squeezy but there is a possibility that women with ME may go through menopause a little earlier and be more likely to suffer complications like hormonal imbalance. Perimenopause can start a good decade before the onset of menopause. The...

Re the blood sugar - I get tremors when I need to eat but while they may initially be most obvious in the hands, they quickly become felt throughout the body & are accompanied by feeling very weak. I don't know if others experience this differently.

As @strategist says a couple of people pretty much just decided that might be the case and then set about building their careers doing their darnedest to prove themselves right. They've maintained these abnormal illness beliefs by sneakily redefining other people's definitions of the disease so...

Well done @PhysiosforME! :thumbup:

Hi @Squeezy :hug: This may not be at all relevant to you but just in case ... I had tremors ranging from I can feel but barely see 'em through to having difficulty eating. I have had similar tremors in the legs & feet. Usually this happened when I was doing too much of a repetitive...

Definitely matches my experience. It would be marvellous if there were some way of measuring or defining pre illness performance as different individuals vary. This was something I was very good at pre illness. I could keep not only where I was in relation to project milestones clearly in my...

Thank you for sharing the information. I really hope you see some improvement soon. :hug:

I do think this is well worth the effort, if you are well enough & able to during encounters. I do believe that many doctors are quite sincere in their efforts to be helpful they just have no clue as to how badly their whole.profession has been mislead by the BPS crew and the NICE guidelines...

I guess it depends on whether you want information going forward or historical records. I think mist consultants will send you a copy of test results and letters to your GP if asked but not the records themselves. I would imagine you woukd need to approach the local health authority. Patient...

Ah! Must be the benefit of all that exercise...... Unlike other 90 year olds I know who usually attribute it to drinking at least one glass of good whisky in the evening! :laugh:

The very fact this Professor Sir Muir Gray individual is giving strangers medical advice on twitter tells us all we need to know about his level of interest in the health and safety of those he's tweeting to & his integrity as a doctor.

Indeed. A cynic might even think it was deliberate. :whistle:

Interesting that the cut off dates are 18-50. Although a friend became a Mum at 18, is it not a much younger than usual age to be considering becoming a parent? Why cut the age off at 50? There are a number of women older than 50 who had to decide not to have children. They also have some...

On a good cognitive day and in the right frame of mind I can defend myself very & argue my case very well in front of a doctor. That doesn't mean a damn though. One thing I have learned from my working life that is very transferable to being an ME patient - You cannot change someone else's...

In theory you do have a choice but in practise it's not quite so simple. The GP (primary care doc) is the gateway to specialist services. The GP will usually decide which speciality you'll see & may want to refer you to a specific doctor, the health authority may refuse to fund you seeing a...

Something else occurred to me. Now I'm not saying this is true of everyone or even the majority of people who are accepting of such a diagnosis. I am also not denying that some people have a great deal.of trauma that continues to affect them, I just don't believe I'm one of them. I also...

it's good to hear from.you & that you're back home again @Graham! Fingers crossed these antibiotics do the trick. Gentle :hug:

Unfortunately there are some who know they are being told they are vulnerable/weak or mentally fragile because of past trauma and still welcome the diagnosis. It's as though it validates some previous suffering they've had. Ignoring the fact that it also dooms them to suffering in the present...

Yes.