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Since I have become ill I have been asked to fill in a number of health questionnaires - I'm not referring to ESA or the like here. In every case there were questions that were ambiguous and open to interpretation on the part of both the person filling it in and the person assessing you in a...

Given the high disease burden on some ethnic minority groups, are you sure you wouldn't like to rephrase this question? The type of jobs people do, their housing, the quality of food they have access to, plus how genetic components affect immune systems and response to infection are more...

My brain is struggling at the minute so please forgive if this is repetition- Do we know if harms are identified as part of the design? When a patient tells their LP practitioner that their condition has become worse, the protocol is to encourage the patient to work harder at practicing the...

Just not Sir Simon. He wrote a book on it. Maybe @Jonathan Edwards might have a comment to add on trial design?

Or many of them will struggle on and hide it as best they can from colleagues. I've heard of consultants who had to quietly go and rest in their cars during the day just to get through. They didn't dare let colleagues find out as it would have destroyed their reputation. I've heard about...

A couple of thoughts @Marky 1). If the "control" also go on to have LP later this makes long term follow up meaningless. Given ME is a fluctuating condition and patients can have relapses that last months, plus some are lucky enough to go through less severe patches (though still ill), to...

I loved exercise. I adored Pilates.and even own a Pilates machine. I even worked out a cut down very minimal routine with the lightest resistance. When well enough, I never had to steel or push myself to get on the machine. I really enjoyed it and often felt like I could keep going and do a...

Yes, we can see how important routine is to Trudge Chalder. She and her pals have been following the same routine at work for years and years with only the most minute changes. Regardless of the patient cohort they've been rerunning the same experiment on different groups of patients and...

Haven't covid patients already suffered enough? :(

Thanks for the references @Kalliope :thumbup:. I still think it is too soon to know. Those references are not enough, to my mind, to extrapolate to the wider population with any authority.

Sure, but where are they getting this information from? I'm not saying it's incorrect. I don't know but, given covid has such a wide array of symptoms, we don't know for sure who has had covid and who has not. In the UK at least there are a probably a fair few who have possibly had it...

And this source for this claim is? Give 'em a chance to actually recover from covid first! For some reason I have an image of vultures circling.....

Er.....what? Is it me or is ascent a peculiar word to use here? Sure, yeah, it's just a sleep issue......

From the response as to why Karla Soares-Weiser will.have the final say should it not be possible to come to an agreement. Given the topic and the entrenched views of some authors, the strength of their vested interests I am a bit puzzled as to why Hilda is so confident. As for the authors...

I don't think you're alone in that. I'm sure many of us don't feel well enough to raise the subject when we're already struggling to communicate our needs in a GP appointment. Many don't feel confident enough in their relationship with their GP. More are hiding from.their GP for fear of IAPT...

Yes. I'm sure given his knowledge & experience the stigma of PVFS, like the stigma of ME, is something he might fear.

I don't really understand the accreditation system but presumably it has to be sanctioned or approved by someone, somewhere as it adds toward the CPD score. Does anyone know what body judges whether a module is acceptable to count as a CPD?

I think Alex has partly answered that here - As has @boolybooly in the post above. Some virus may also lurk in hidden reservoirs undetected, so the test isn't absolute proof that there is no longer any virus present, just that it can no longer be picked up by that test. We assume if it isn't...

I agree, he's not going to be in the best of places at the moment. Neither are other post covid patients and to be fair to him he is trying to highlight there isn't an On/Off switch with covid. However, as a Professor of infectious disease, if he had been listening to his patients prior to...

That's my very brief window of clarity for the year! edit - would you like me to delete the response and then this post to tidy up?