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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article from two days ago in the Swedish newspaper Expressen. Includes an interview with prof. Jonas Bergquist. He says among other: One explanation for why some people get sick for a long time and have a hard time with the recovery after having covid-19 may be that the energy function in the...
  2. Kalliope

    General thread on functional disorders in Denmark

    Here's a link to a PDF about this from the Danish Health Authority titled "Model for interdisciplinary treatment course for patients with diffuse persistent symptoms of low metabolism" (my translation of the title, the PDF is in Danish)
  3. Kalliope

    A general thread on the PACE trial!

    I put this here, even though PACE is not mentioned in this New Yorker article from two days ago. But other bumps in the road for The Lancet editor in chief are mentioned and he gives this interesting quote regarding the newly retracted hydroxochloroquine study: “Science is not immune to having...
  4. Kalliope

    Richard Horton on Covid-19

    Copied from this thread I put this here, even though PACE is not mentioned in this New Yorker article from two days ago. But other bumps in the road for The Lancet editor in chief are mentioned and he gives this interesting quote regarding the newly retracted hydroxochloroquine study: “Science...
  5. Kalliope

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Looks like an excellent and important letter. It is signed by over 60 international ME experts.
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NBC NEWS Some COVID-19 patients aren't getting better. Major medical centers are trying to figure out how to help. David Putrino, physical therapist and assistant professor at the Mount Sinai Health System, New York says it's a very real condition. He's begun to develop "a kind of protocol"...
  7. Kalliope

    Low-dose Naltrexone articles and experiences

    Thank you so much, @Yessica ! I'm so sorry to hear about your loss. Agree with @Anna H it sounds like it was a wise decision to wait. :hug:
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Conversation June 24th - What doctors know about lingering symptoms of coronavirus by prof William Petri The article discusses several serious symptoms. Interesting that it's only in connection with post-infection fatigue prof Petri believes mental health intervention to COVID-19 survivors...
  9. Kalliope

    Low-dose Naltrexone articles and experiences

    That sounds awful. Thanks for telling though. Good to be aware of! I'm sorry LDN wasn't for you.
  10. Kalliope

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Trial by Error by David Tuller: My Letter to Author of CODES Commentary Earlier today, I sent the following letter to Dr David Perez, a neurologist and psychiatrist at Massachusetts General Hospital in Boston. Dr Perez, an expert on functional neurological disorders, wrote a commentary for...
  11. Kalliope

    Low-dose Naltrexone articles and experiences

    So glad to hear you feel it helps you @pteropus !! I can imagine that was a wonderful day to be out in the sunshine again after so long time :) It's still early days here, but no side effects at least so far.
  12. Kalliope

    General thread on functional disorders in Denmark

    Just noticed this article in a Danish journal for medicine and health about a large sum which was allocated to optimise treatment opportunities for patients with hypothyroidism. In March this year some of this money got redistributed to include treatments of functional disorders. So if any...
  13. Kalliope

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Trial by Error by David Tuller: CODES Trial Commentary Promotes "Eminence-Based Medicine" By all accounts, the recently published CODES trial was the most authoritative study to date of whether cognitive behavior therapy (CBT) was an effective treatment for so-called dissociative seizures–a...
  14. Kalliope

    US podcast, On Point. - "Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality"

    Here's the quote from Ed Yong: - Other viral infections and other diseases have led to similar ways of symptoms before and conditions that present in similar way, like ME or Chronic Fatigue Syndrome. People with those conditions have long been dismissed. They’ve been told that their diseases...
  15. Kalliope

    US podcast, On Point. - "Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality"

    It's up now. Looks good, am looking forward to hear it. wbur: Lingering Symptoms, Long-Term Damage: For Some, It's A COVID-19 Recovery Reality Guests are dr. Mafuzur Rahman and Ed Yong. Link has the reading list.
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Week: Coronavirus and ME: doctors fear wave of chronic fatigue syndrome Article quotes NHS, The Washington Post, CDC, The Atlantic and BMJ As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The BMJ - When will we be well again? By Helen Salisbury With other illnesses I can map out the territory ahead and discuss the usual course of events I would expect to see in patients with similar conditions. Although timescales may be imprecise, we have some experience and textbooks to guide...
  18. Kalliope

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Trial by Error by David Tuller: More Questions About CODES Trial of CBT for Seizures Post-CODES, it should no longer be possible to assert that CBT is a treatment for dissociative seizures. At best, it appears to be an intervention that can provide some patients with the kinds of psychosocial...
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